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Head, UCL Centre for Amyloidosis and NAC Research Lead | Professor Julian Gillmore | 020 7433 2737/2798 |
| NAC Clinical Lead | Professor Helen Lachmann | 020 7433 2737/2798 |
| Deputy Clinical and Research Lead | Professor Marianna Fontana | 020 7433 2764 |
| Emeritus Professor | Professor Sir Mark Pepys | 020 7433 2801 |
| Professors/Consultants | Professor Philip Hawkins | 020 7433 2737/2798 |
| Professor Ashutosh Wechalekar | 020 7433 2737/2798 | |
| Readers/Senior Lecturers/Consultants | Dr Ayesha Shameem Mahmood | 020 7433 2737/2798 |
| Dr Ana Martinez De Azcona Naharro | 020 7433 2777 | |
| Dr Carol Whelan | 020 7433 2737/2798 | |
| Dr Sriram Ravichandran | 020 7433 2763 | |
| Clinical Research Staff | Dr Aldostefano Porcari | 020 7433 2777 |
| Dr Josephine Mansell | 020 7433 2777 | |
| Dr Yousuf Razvi | 020 7433 2777 | |
| Dr Muhammad Umaid Rauf | 020 7433 2717 | |
| Lead Nurse | Angelique Smit | 020 7433 2770 |
| Lead Nuclear Medicine Technologist | David Hutt | 020 7433 2742 |
| Assistant Operations Manager | Ramon Lamarca | 02074332756 |
| Nursing Helpline | 020 7433 2799/ 07790 989695 | |
| Specialist/Research Nurses | Darren Foard | |
| Lisa Rannigan | ||
| Michael Wood | ||
| Deborah Hull | ||
| Rennah Gaudia | ||
| Joan Galima | ||
| Vinoththa Visgnanamoorthy | ||
| Clinical Trial Coordinator | Sarah Louth | 020 7433 2723 |
| Service Manager | Ayub Hamid | 020 7433 2790 |
| Clinical Pathway Manager | Gemma Emmanuel | 020 7433 2772 |
| Medical Secretaries | Juliana Calinescu | 020 7433 2737/2811 |
| Appointments | rf-tr.amyloidosisappointments@nhs.net | 020 7433 2812/2725/2800 |
| Blood Results (excluding genetic testing results) | rf-tr.amyloidosisresults@nhs.net | 020 7433 2812 |
| Transport & Accommodation | Michael Gayle | 020 7433 2812 |
| General Enquiries | rf-tr.amyloidosis-admin@nhs.net | 020 7433 2811 |
The NHS National Amyloidosis Centre is the only centre in the UK specialising in amyloidosis and is part of University College London Centre for Amyloidosis and Acute Phase Proteins, one of the world's leading centres for amyloid research. The Centre has "state of the art" clinical and research facilities, and a team of highly qualified clinical, research and support staff.
We pioneered scintigraphic imaging (scanning) of amyloid as a quantitative diagnostic procedure and provide a comprehensive clinical service for patients with all types of acquired and hereditary systemic amyloidosis. The NHS National Amyloidosis Centre is commissioned by NHS National Specialised Services and funded by the Department of Health to provide a diagnostic and management advice service for the UK's national caseload of patients with amyloidosis and related disorders. The clinical service includes:
- Detailed clinical assessment.
- Diagnosis, quantification and monitoring of amyloidosis with whole body SAP scintigraphy.
- Comprehensive expert diagnostic and monitoring studies of the heart, as required, by cardiac magnetic resonance, echocardiography and DPD scanning.
- Review of diagnostic biopsies and specialised immunohistochemistry to determine amyloid type.
- Characterisation and exclusion of hereditary amyloidosis by DNA testing; genetic counselling.
- Measurement and monitoring of specialised biochemical (blood) tests for serum free light chains and serum amyloid A protein.
- Recommendations for treatment and monitoring response.
- 3‑12 monthly follow‑up to assess response and further treatment requirements. Sometimes follow‑up assessment can be performed by telephone if patients live far away.
- Providing information and support to amyloidosis patients, their families and health providers.
- Systematic evaluation of existing and new treatments.
- Diagnosis, monitoring and treatment of inherited fever syndromes.