Centre for Amyloidosis and Acute Phase Proteins


Information for Patients

Information for patients on the coronavirus (COVID-19)

UPDATE:  As of 01 June 2020 the National Amyloidosis Centre has reopened. We will be conducting clinics via telephone/video-link, or where appropriate, in person. We will be in touch to let you know what type of appointment you will be having.

For FEVER PATIENTS who receive treatments at the Centre, such as Canakinumab, Anakinra and Tocilizumab, they will continue to have their appointments at this time.  Please contact Michael Wood or Bella Sombrito if you have any questions.

Information for amyloidosis patients

Your emotional wellbeing during the pandemic
Ideas for isolation

What to expect at your appointment

Directions and maps

Advice on how to find cheap train tickets

NHS England Healthcare Travel Costs Scheme

Instructions for 24 hour urine collection

Patient information leaflets

Information for patients with cardiac ATTR amyloidosis

Patient information for Amyloidosis Study with Hospital Episodes Statistics (HES) data

Local amyloidosis support groups

Travel insurance

Useful links to support groups, etc

A website with comprehensive information for patients