UCL Queen Square Institute of Neurology


Psychosocial Function and Quality of Life

Cognitive-Motor Neuroscience Group


Lab Head: Professor Marjan Jahanshahi

Movement disorders have a major impact on the daily functioning, psychosocial well-being and quality of life of the patients. We have been interested in the impact of movement disorders and other chronic neurological disorders on the daily life of the patients and their families since the late 1980s. In recent years, we have focused on the impact of Parkinson’s disease on the quality of life of the patients and their carers. More recently, we have developed and validated a ‘Parental Illness Impact Scale’ to investigate the effect on children when their parent has a chronic neurological disorder such as Parkinson’s disease, multiple sclerosis or stroke.

Examples of relevant publications

Jahanshahi M & Marsden CD Living and coping with Parkinson’s disease: A self-help guide for patients and their carers. Souvenir Press, Human Horizon Series, 1998,


· Published in USA by Demos Medical Publishing, 2000.

· Translated and published in Spain by EDIMSA, 2000.

Schrag A Jahanshahi M Quinn NP (2000) What contributes to quality of life in patients with Parkinson's disease? J Neurol Neurosurgery & Psychiatry, 69, 308-312.

Schrag A Jahanshahi M Quinn NP (2001) What contributes to depression in Parkinson's disease? Psychological Medicine, 31, 65-73.

Schrag A Morley D Quinn N Jahanshahi M (2004) Development of a measure of the impact of chronic parental illness on adolescent and adult children: The parental illness impact scale (Parkinson’s disease). Parkinsonism & Related Disorders, 10, 399-405.

Lewis L Butler A Jahanshahi M (2008) Depression in focal, segmental and generalized dystonia. J Neurology, 255:1750–1755

Rahman, S, Griffin HJ, Quinn, NP, Jahanshahi, M (2008) Quality of life in Parkinson’s disease: the relative importance of the symptoms Movement Disorders, 23, 1428-1434.