Ataxia UK Medical Guidelines updated & expanded
5 November 2018
Ataxia UK updated and expanded Medical Guidelines were produced to help healthcare professionals in the diagnosis and management of people with ataxia
These guidelines are the result of extensive consultation with ataxia specialist neurologists and other healthcare professionals, including Professor Paola Giunti. They include comprehensive sections on diagnosis, medical interventions for symptom relief and therapies. In November 2018 they were endorsed by the European Reference Network for rare neurological diseases (ERN-RND).
A summary of the guidelines was published this year in two scientific journals:
- de Silva et al. Guidelines on the diagnosis and management of the progressive ataxias. Orphanet J Rare Dis. 2019 Feb 20;14(1):51. doi: 10.1186/s13023-019-1013-9.
- de Silva et al. Diagnosis and management of progressive ataxia in adults. Pract Neurol. 2019 Jun;19(3):196-207. doi: 10.1136/practneurol-2018-002096. Epub 2019 May 2.