UCL Queen Square Institute of Neurology


Postural Tachycardia Syndrome

Postural tachycardia syndrome (PoTS): information from the NHS website

Postural Tachycardia Syndrome PoTS: information from Patient UK website

Postural Trachycardia Syndrome: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Support Groups

This charity aims to support and encourage individuals with PoTS. They hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources.

Syncope Trust And Reflex anoxic Seizures (STARS)
This organisation works together with individuals, families and medical professionals to offer support and information on syncope and reflex anoxic seizures.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.