UCL Queen Square Institute of Neurology


Inclusion Body Myositis

Medline NLM definition: A progressive inflammatory myopathy primarily involving muscles of the pelvic region and legs, usually seen in older people. The muscles are infiltrated by mononuclear inflammatory cells, sarcoplasmic vacuoles, masses of filaments and filamentous microtubules, and sometimes eosinophilic bodies. (Dorland, 28th ed)

Inclusion Body Myositis: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Myositis: information from the NHS website

PubMed Medline search on Inclusion Body Myositis

Support Groups

The Myositis Support Group
UK charity specific for the inflammatory myopathies; Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis.

Myositis UK 
Provides further information, help and support for people who are diagnosed with myositis and their families.

The Myositis Association (US site)
Provides information about polymyositis and dermatomyositis.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.