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General patient support websites

The two local charities for Queen Square are the Brain Research Trust (supporting the ION) and the National Brain Appeal (supporting the NHNN)

Association of Medical Research Charities - National membership organisation of leading medical and health research charities.

Brain Charity - The Brain Charity (previously known as Neurosupport) offers non-medical advice to people with neurological conditions and the families, friends and carers who support them.

Brain Research Trust - Brain Research Trust is the umbrella charity for research into conditions of the brain and nervous system, promoting and supporting research into the causes, treatment, prevention and cure of neurological diseases.  We fund basic and clinical research at University College London’s world-renowned Institute of Neurology.

Clinical guidelines - from Patient.co.uk.  Clinical guidelines aim to help health professionals and patients make the best decisions about treatment or care for a particular condition or situation. The guidelines are typically written in statement form by a reputable organization.

Contact a Family - Contact a Family is the only UK charity providing support and advice to parents whatever the medical condition of their child.

CORE - for those wishing to read around academic research articles, CORE is a tool to facilitate free public access to content stored in Open Access repositories across the world.

DIPEx - healthtalkonline & youthhealthtalk - DIPEx has created a unique database of personal and patient experiences through in-depth qualitative research into over 40 different illnesses and health conditions.

DVLA Guidelines for Medical Staff - This publication summarises the national medical guidelines of fitness to drive and is available to doctors and health care professionals. See also DVLA Information for Drivers

EasyHealth - For people who have learning disabilities, or who struggle with English, EasyHealth can be a really useful resource for leaflets. The website has got different ones for lots of common health conditions, and others that explain common medical procedures like having blood taken.

eMC - The electronic Medicines Compendium (eMC) provides electronic Summaries of Product Characteristics (SPCs) and Patient Information Leaflets (PILs). It provides information on thousands of licensed medicines available in the UK, continuously updated with new and revised SPC and PIL information.

Evidence Search - NICE (National Institute for Health and Care Excellence) have  over 12,500 records in Evidence search under the filter ‘information for the public’. While the service is primarily aimed at professional users, this is content that the medical community can share with patients.

Guardian:  Best Treatments - Guardian readers can now access the BMJ Group's independent, high quality patient information on a wide range of health issues.

Health apps Library - From NHS Choices - Safe and trusted apps to help you manage your health.

Health Awareness Weeks

Healthfinder.gov (US site) - a US government Web site providing information and tools to help you and those you care about stay healthy.

MedlinePlus ( U.S. site) - MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. MedlinePlus is updated daily and can be bookmarked at the URL: medlineplus.gov. There is no advertising on this site, nor does MedlinePlus endorse any company or product.

National Brain Appeal - The National Brain Appeal is the charity dedicated to raising much needed funds for The National Hospital for Neurology and Neurosurgery in Queen Square London.

National Institute on Aging (US site) - This easy-to-use website features health and wellness information for older adults from the National Institutes of Health.

Netdoctor.co.uk - NICE Guidance (National Institute for health & Clinical Excellence, NHS) All the clinical guidance is produced in patient friendly versions called 'Understanding Nice Guidance'. 

NeuroTalk Communities - A secure, reliable online support community for people with neurological disorders and diseases.

NHS Choices - NHS Choices is a service that aims to put you at the centre of your healthcare by providing a comprehensive health information service. Using screenshots and short descriptions, and developed by Health Librarians, there is a new guide to use to find the wide range of health information freely available on NHS Choices.

Patients like me (US site) - PatientsLikeMe is committed to providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease.

Patient UK - Details of nearly 2000 UK patient support organisations, self help groups, health and disease information providers, etc. Each entry is cross referenced and details are checked annually. This site has advertising.

UK Clinical Trials Gateway - Database of UK trials.


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