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UCL Queen Square Institute of Neurology

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Craniosynostosis

Medline NLM definition: Premature closure of one or more sutures of the skull. Year introduced: OXYCEPHALY was see under CRANIOSYNOSTOSES 1963-1978
One of the commonest types of craniosynostosis is Crouzon syndrome


Carniosynostosis: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Craniosynostosis: information from the NHS website

PubMed Medline search on Craniosynostosis

Support Groups

Headlines
Craniofacial Support Group.  All conditions associated with Craniosynostosis are supported, including Apert Syndrome, Crouzon Syndrome, Pfeiffer Syndrome, Saethre-Chotzen Syndrome, Single Suture Craniosynostosis

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.

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