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UCL Queen Square Institute of Neurology

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Behcet's Disease

Medline NLM definition: rare chronic inflammatory disease involving the small blood vessels. It is of unknown etiology and characterized by mucocutaneous ulceration in the mouth and genital region and uveitis with hypopyon. The neuro-ocular form may cause blindness and death. Synovitis, thrombophlebitis, gastrointestinal ulcerations, retinal vasculitis, and optic atrophy may be occur as well.

Behcet's Disease: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Behcet's Disease: information from the NHS website

Behcet's Syndrome: information from NORD, the National Organization for Rare Disorders (US site)

PubMed Medline search on Behcet's syndrome

MedlinePlus Health Information

Support Groups

Behcet's UK (formerly Behçet's Syndrome Society):
Provides information and support for people with Behçet's syndrome and their carers. 

American Behcet's Disease Association (US site)
Provides support and information to people with Behçet's Disease and their families and to educate the medical community about Behçet's Disease.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.

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