UCL Queen Square Institute of Neurology



Medline NLM definition for aphasia: defect or loss of the power of expression by speech, writing, or signs, or of comprehending spoken or written language, due to injury or disease of the brain centers. (Dorland, 27th ed)

Aphasia: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Aphasia: factsheet from American Speech-Language-Hearing Association (US site)

Aphasia: information from Patient UK website

Landau-Kleffner syndrome: information from Patient UK website

Landau-Kleffner Syndrome: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

PubMed Medline search on aphasia

Support Groups

Rare Dementia Support service.
Rare Dementia Support runs specialist support services for individuals living with, or affected by, primary progressive aphasia (PPA). They provide regular support group meetings, newsletters, telephone contact networks, websites and access to information and advice for people affected by these five rare dementia conditions. Rare Dementia Support is a unique, world-leading service providing support, guidance and information to everyone affected by or at risk of a rare dementia, in a space of mutual respect and community. It builds on the pioneering research of the UCL Dementia Research Centre (DRC) and its expertise in young-onset, inherited and unusual dementias. With the generous support of the Selfridges Group Foundation and expertise from their digital and creative teams, they have designed a new, innovative online support platform. People living with rare dementias informed every step of the development process: from website layout, accessibility and content to design, fonts and colours.

Stroke Association
The Stroke Association (with which Speakability merged in 2015) is the national charity dedicated to supporting and empowering people with Aphasia and their carers.

Royal College of Speech and Language Therapists
This is the homepage of the Royal College of Speech and Language Therapists, the professional body for speech and language therapists in the UK. Although aimed at professionals, the site gives information on how to contact a speech and language therapist and produces a selection of leaflets and publications.

National Aphasia Association (US site)
The National Aphasia Association is a non-profit US based organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.

The Speakeasy charity provides information and advice about aphasia and associated challenges, providing support for people affected by aphasia and a range of therapeutic activity for developing communication, skills and confidence.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.