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EMBED-Care Outputs

Outputs

Library shelves

Please see below for the range of outputs from EMBED-Care

Publications
Yorganci, E., Stewart R., Sampson E.L. and Sleeman, K.E. (2022) Patterns of unplanned hospital admissions among people with dementia: From diagnosis to the end of life. Age & Ageing, vol 1:5,  https://doi.org/10.1093/ageing/afac098

 

Crawley, S., Sampson, E.L., Moore, K.J., Kupeli, N., and West, E. (2022) Grief in family carers of people living with dementia: A systematic review. International Psychogeriatrics, 1-32. https://doi.org/10.1017/S1041610221002787

 

Gillam, J., Davies, N., Aworinde, T., Yorganci, E., Anderson, J and Evans, C. (2021) Implementation of eHealth to support assessment and decision-making for residents in long-term care: systematic review. Journal of Medical Internet Research. https://preprints.jmir.org/preprint/29837/accepted

Yorganci, E., Sampson, E.L., Gillam, J., Aworinde, J., Leniz, J., Williamson, L.E., Cripps, R.L., Stewart, R. and Sleeman, K.E. (2021) Quality indicators for dementia and older people nearing the end of life: A systematic review. Journal of the American Geriatrics Society https://doi.org/10.1111/jgs.17387

 
Sleeman, K.E., Timms, A., Gillam, J. et al. (2021) Priorities and opportunities for palliative and end of life care in United Kingdom health policies: a national documentary analysis. BMC Palliative Care 20, 108 https://doi.org/10.1186/s12904-021-00802-6
 
Lapid, M.I., Koopmans, R., Sampson, E.L., Van Den Block, L. and Peisah, C. (2020) Providing quality end-of-life care to older people in the era of COVID-19: perspectives from five countries. International Psychogeriatrics doi:10.1017/S1041610220000836
 

Sampson, E.L. et al. (2019) Empowering Better End of Life Dementia Care (EMBED-Care): A mixed methods protocol to achieve intergrated person-centred care across settings. International Journal of Geriatric Psychiatryhttps://doi.org/10.1002/gps.5251

Presentations

Gillam, J., Evans, C.J. and, Davies, N.  Developing a plan to implement an eHealth intervention to support assessment and decision making for people with dementia in care homes: a co-design study. 35th Global Conference of Alzheimer's Disease International, 9-11th June 2022, London

Crawley, S., West, E., Kupeli, N., Moore, K. Predictors of Pre-death and Post Death Grief in Family Carers of People with Dementia. A Systematic Review. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

de Wolf_Linder, S., Kupeli, N., Crawley, S., Reisinger, M., Kenten, C., Gohles, E., Ellis-Smith, C., Davies, N., Moore, K., Sleeman, K., Schubert, M., Sampson, E.L., Murtaugh, F. and Evans, C.J. Using Structured, Person-Centred Measures for People with Dementia Unable to Self-Report to Identify and Meet Palliative Care Needs: Reflections from Empowering Better End of Life Dementia Care. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Evans C.and Sampson E., EMBED-Care. Providing a Firm Base: A System-Based Logic Model of Integrated Palliative Dementia (the EMBED-Care Programme). 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Gillam, J., Davies, N., Aworinde, J., Yorganci, E., Anderson, J. and Evans C. Implementation of eHealth Interventions to Support Assessment and Decision Making for Residents with Dementia in Care Homes: A Systematic Review. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Sisk, A.-R., Bruun, A., Mitchinson, L., Warren, J., Kupeli, N. and Sampson, E.L. Understanding Palliative Care Needs of People with Frontotemporal Lobar Degeneration (FTLD); Systematic Review. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Yorganci, E., Stewart, R., Sampson, E. and Sleeman K.Patterns of Unplanned Hospital Admissions among People with Dementia: From Diagnosis to the End of Life. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Sampson, E.L. (2020)  “Improving end of life care for people with dementia” Alzheimer's Disease International (ADI) Webinar: Dementia care & Palliative care: during and beyond the COVID-19 pandemic, London.
 
Sampson E. L. (2020) Achieving impactful policy change through research: examples from dementia palliative care, Marie Curie Virtual Conference Research Conference.
 

Evans CJ and Sampson EL on behalf of EMBED-Care 'Evaluating methods for optimal integration in frailty and dementia: a system-based logic model for Empowering Better End of life Dementia Care (EMBED-Care)' 11th World Research Congress, European Association of Palliative Care, 7-9th October 2020 (online)

Evans CJ ‘EMBED-Care’ Care Home Research Network South London, Annual Conference, 16th May 2019, London UK

Evans CJ ‘EMBED-Care programme’ International Conference on Palliative Dementia Care, 9th May 2019, Northern Ireland Hospice, Belfast, Northern Ireland

Posters

Yorganci, E., Stewart, R., Sampson, E.L. and Sleeman, K.E.  How might patterns of unplanned hospital admissions among people with dementia change from diagnosis to the end of life? 35th Global Conference of Alzheimer's Disease International, 9-11th June 2022, London.

Aworinde J., Ellis-Smith C., Evans C.J. Co-designing the process and requirements to use a Person-Centred outcome measure to enhance shared decision-making in dementia care. 12th World Research Congress of the European Association for Palliative Care, 18-20th May 2022 (online)

Crawley S, Kenten C, Kupeli N, Collier, I and Sampson, E L. Learning from experience: running the EMBED-Care cohort study with people with dementia and their carers during the COVID-19 pandemic. 12th World Research Congress of the European Association for Palliative Care, 18-20th May 2022 (online)

Gillam J,  Davies N, Evans C J. Co-designing an implementation plan for an eHealth intervention to optimise care for people with dementia in care homes. 12th World Research Congress of the European Association for Palliative Care, 18-20th May 2022 (online)

Tunnard I, Gillam J, Vickerstaff V, Harvey, C, Davis, N, Ellis-Smith, C & Evans, C.J. The acceptability and effectiveness of eHealth interventions to support assessment and decision making for people with dementia living in care homes: A systematic review. 12th World Research Congress of the European Association for Palliative Care, 18-20th May 2022 (online)

Aworinde, J., Ellis-Smith, C., Gillam, J., Roche, M., Coombes, L., Yorganci, E. and Evans C. Using Person-centred Outcome Measures to Enable Shared Decision-making and Improve Outcomes of Care for People with Dementia and Their Family Carers: A Systematic Review. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Gallagher, J., Winkler, T., Tunnard, I., Kenten, C., Sampson, E.L. and Evans C. Person-centred Care in Dementia at the End of Life: A Scoping Review and Concept Analysis. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Sleeman, K., Timms, A., Gillam, J., Anderson, J., Harding, R., Sampson, E. and Evans C.1 Priorities and Opportunities for Palliative and End of Life Care in National Health Policies: A Documentary Analysis. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Yorganci, E., Sampson, E.L., Gillam, J., Aworinde, J., Leniz, J., Thoms, L., Cripps, R., Stewart, R., and Sleeman K. Quality Indicators for Palliative Care of Older, Frail People and People with Dementia Using Routinely Collected Electronic Datasets: A Systematic Review. 17th World Congress of the European Association for Palliative Care, 6-8th October 2021 (online)

Evans CJ, Aworinde J, Candy B, Mughal R, Anderson J, Harding R, Sampson E, on behalf of the EMBED-Care programme. ‘A logic model of the evidence from a systematic meta-review for integrated palliative dementia care to optimise quality of life for people with dementia nearing the end of life’ 11th World Research Congress of the European Association for Palliative Care, May 2020, Palermo, Italy

Reports

Newsletters

EMBED-Care Newsletter Spring 2021

EMBED-Care Newsletter Autumn 2021

EMBED-Care Newsletter Summer 2021

EMBED-Care Newsletter Spring 2021

EMBED-Care Newsletter Autumn 2020

EMBED-Care Newsletter Summer 2020

EMBED-Care Newsletter Spring 2020