EMBED-Care Outputs

Outputs

Please see below for the range of outputs from EMBED-Care

Publications: Gillam, J., Evans, C., Aworinde, J., Ellis-Smith, C., Ross, J. and Davis, N. (2023) Co-design of a theory-based implementation plan for a holistic eHealth assessment and decision support framework for people with dementia in care homes. Digital Health, https://doi.org/10.1177/20552076231211118
Yorganci, E., Sleeman, K.E., Sampson, E.L., Stewart, R and on behalf of the EMBED-Care Programme (2023) Survival and critical care use among people with dementia in a large English Cohort. Age and Ageing, https://academic.oup.com/ageing/article/52/9/afad157/7262781
Aworinde, J., Ellis-Smith, C., Gillam, J., Roche, M., Coombes, L., Yorganci, E., & Evans, C. J. (2022). How do person-centered outcome measures enable shared decision-making for people with dementia and family carers? A systematic review. Alzheimer's & dementia, https://doi.org/10.1002/trc2.12304
Tunnard, I., Gillam, J., Harvey, C., Davies, N., Vickerstaff, V, Ellis-Smith, C. and Evans C.J. (2002) The acceptability and effectiveness of eHealth interventions to support assessment and decision-making for people with dementia living in care homes: A systematic review. Frontiers in Dementia, vol1. https://doi.org/10.3389/frdem.2022.977561
Yorganci, E., Stewart R., Sampson E.L. and Sleeman, K.E. (2022) Patterns of unplanned hospital admissions among people with dementia: From diagnosis to the end of life. Age & Ageing, vol 1:5, https://doi.org/10.1093/ageing/afac098
Crawley, S., Sampson, E.L., Moore, K.J., Kupeli, N., and West, E. (2022) Grief in family carers of people living with dementia: A systematic review. International Psychogeriatrics, 1-32. https://doi.org/10.1017/S1041610221002787
Gillam, J., Davies, N., Aworinde, T., Yorganci, E., Anderson, J and Evans, C. (2021) Implementation of eHealth to support assessment and decision-making for residents in long-term care: systematic review. Journal of Medical Internet Research. https://preprints.jmir.org/preprint/29837/accepted
Yorganci, E., Sampson, E.L., Gillam, J., Aworinde, J., Leniz, J., Williamson, L.E., Cripps, R.L., Stewart, R. and Sleeman, K.E. (2021) Quality indicators for dementia and older people nearing the end of life: A systematic review. Journal of the American Geriatrics Society https://doi.org/10.1111/jgs.17387
Sleeman, K.E., Timms, A., Gillam, J. et al. (2021) Priorities and opportunities for palliative and end of life care in United Kingdom health policies: a national documentary analysis. BMC Palliative Care 20, 108 https://doi.org/10.1186/s12904-021-00802-6

Lapid, M.I., Koopmans, R., Sampson, E.L., Van Den Block, L. and Peisah, C. (2020) Providing quality end-of-life care to older people in the era of COVID-19: perspectives from five countries. International Psychogeriatrics doi:10.1017/S1041610220000836

Sampson, E.L. et al. (2019) Empowering Better End of Life Dementia Care (EMBED-Care): A mixed methods protocol to achieve integrated person-centred care across settings. International Journal of Geriatric Psychiatry. https://doi.org/10.1002/gps.5251

Aworinde, J., Evans, C., Gillam, J., Davis, N., Ramsenthaler, C., Ellis-Smith C. An intervention to enhance shared decision-making: Co-design with people living with dementia, family carers and practitioner. 33^rd Alzheimer Europe Conference, 16-18^th October 2023, Helsinki, Finland.

Kupeli, N., Collier, I., Crawley, S., Ellis-Smith, C., Kenten, C., Moore, K., Yorganci, E., Evans, C.J. and Sampson, E.L. Palliative care needs of people living with dementia following an unplanned hospital admission in the UK: A longitudinal cohort study. 18th World Congress of the European Association for Palliative Care, 15-17th June 2023, Rotterdam, Netherlands

Yorganci, E., Kenten, C., Evans, C.J., Sampson, E.L., Tunnard, I., Ellis-Smith, C., Kupeli, N. Duffy, B., Sisk, A-R., Davies, N. and Sleeman, K.E. on behalf of the EMBED-Care Team. How Much Does the United Kingdom Public Know about Dementia and the Role of Palliative and End-of-Life Care? A Representative Public Opinion Poll. 18th World Congress of the European Association for Palliative Care, 15-17th June 2023, Rotterdam, Netherlands

Gillam, J., Evans, C.J. and, Davies, N. Developing a plan to implement an eHealth intervention to support assessment and decision making for people with dementia in care homes: a co-design study. 35th Global Conference of Alzheimer's Disease International, 9-11^th June 2022, London

Crawley, S., West, E., Kupeli, N., Moore, K. Predictors of Pre-death and Post Death Grief in Family Carers of People with Dementia. A Systematic Review. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

de Wolf_Linder, S., Kupeli, N., Crawley, S., Reisinger, M., Kenten, C., Gohles, E., Ellis-Smith, C., Davies, N., Moore, K., Sleeman, K., Schubert, M., Sampson, E.L., Murtaugh, F. and Evans, C.J. Using Structured, Person-Centred Measures for People with Dementia Unable to Self-Report to Identify and Meet Palliative Care Needs: Reflections from Empowering Better End of Life Dementia Care. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Evans C.and Sampson E., EMBED-Care. Providing a Firm Base: A System-Based Logic Model of Integrated Palliative Dementia (the EMBED-Care Programme). 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Gillam, J., Davies, N., Aworinde, J., Yorganci, E., Anderson, J. and Evans C. Implementation of eHealth Interventions to Support Assessment and Decision Making for Residents with Dementia in Care Homes: A Systematic Review. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Sisk, A.-R., Bruun, A., Mitchinson, L., Warren, J., Kupeli, N. and Sampson, E.L. Understanding Palliative Care Needs of People with Frontotemporal Lobar Degeneration (FTLD); Systematic Review. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Yorganci, E., Stewart, R., Sampson, E. and Sleeman K.Patterns of Unplanned Hospital Admissions among People with Dementia: From Diagnosis to the End of Life. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Sampson, E.L. (2020) “Improving end of life care for people with dementia” Alzheimer's Disease International (ADI) Webinar: Dementia care & Palliative care: during and beyond the COVID-19 pandemic, London.

Sampson E. L. (2020) Achieving impactful policy change through research: examples from dementia palliative care, Marie Curie Virtual Conference Research Conference.

Evans CJ and Sampson EL on behalf of EMBED-Care 'Evaluating methods for optimal integration in frailty and dementia: a system-based logic model for Empowering Better End of life Dementia Care (EMBED-Care)' 11th World Research Congress, European Association of Palliative Care, 7-9th October 2020 (online)

Evans CJ ‘EMBED-Care’ Care Home Research Network South London, Annual Conference, 16^th May 2019, London UK

Evans CJ ‘EMBED-Care programme’ International Conference on Palliative Dementia Care, 9^th May 2019, Northern Ireland Hospice, Belfast, Northern Ireland

Posters

Davies, N. Gillam, J., Aworinde, J. Harvey, C., Phillips, B., Kenten, C., Sampson, E.L., Evans, C.J. and Ellis-Smith, C. Co-design of a Digital Framework for Integrated Palliative Dementia Care to Support Holistic Assessment and Decision-making. 18th World Congress of the European Association for Palliative Care, 15-17th June 2023, Rotterdam, Netherlands

Sisk, A-R., Kupeli, N., Kenten, C., Warren, J. and Sampson, E.L. Exploring the Palliative Care Needs of People Living with Frontotemporal Lobar Degeneration (FTLD) Using the Integrated Palliative Care Outcome Scale for Dementia (IPOS-Dem). 18th World Congress of the European Association for Palliative Care, 15-17th June 2023, Rotterdam, Netherlands.

Yorganci, E., Sleeman, K.E., Sampson, E.L. and Stewart, R. Trends in Critical Care Admissions of People with Dementia in the Last Year of Life in a Large English Cohort Using a Novel Data Linkage. 18th World Congress of the European Association for Palliative Care, 15-17th June 2023, Rotterdam, Netherlands

Yorganci, E., Stewart, R., Sampson, E.L. and Sleeman, K.E. Identifying Distinct Profiles of People with Dementia Based on their Healthcare Use in the Last Year of Life Using Routine Data. 18th World Congress of the European Association for Palliative Care, 15-17th June 2023, Rotterdam, Netherlands.

Yorganci, E., Stewart, R., Sampson, E.L. and Sleeman, K.E. How might patterns of unplanned hospital admissions among people with dementia change from diagnosis to the end of life? 35th Global Conference of Alzheimer's Disease International, 9-11^th June 2022, London.

Aworinde J., Ellis-Smith C., Evans C.J. Co-designing the process and requirements to use a Person-Centred outcome measure to enhance shared decision-making in dementia care. 12^th World Research Congress of the European Association for Palliative Care, 18-20^th May 2022 (online)

Crawley S, Kenten C, Kupeli N, Collier, I and Sampson, E L. Learning from experience: running the EMBED-Care cohort study with people with dementia and their carers during the COVID-19 pandemic. 12^th World Research Congress of the European Association for Palliative Care, 18-20^th May 2022 (online)

Gillam J, Davies N, Evans C J. Co-designing an implementation plan for an eHealth intervention to optimise care for people with dementia in care homes. 12^th World Research Congress of the European Association for Palliative Care, 18-20^th May 2022 (online)

Tunnard I, Gillam J, Vickerstaff V, Harvey, C, Davis, N, Ellis-Smith, C & Evans, C.J. The acceptability and effectiveness of eHealth interventions to support assessment and decision making for people with dementia living in care homes: A systematic review. 12^th World Research Congress of the European Association for Palliative Care, 18-20^th May 2022 (online)

Aworinde, J., Ellis-Smith, C., Gillam, J., Roche, M., Coombes, L., Yorganci, E. and Evans C. Using Person-centred Outcome Measures to Enable Shared Decision-making and Improve Outcomes of Care for People with Dementia and Their Family Carers: A Systematic Review. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Gallagher, J., Winkler, T., Tunnard, I., Kenten, C., Sampson, E.L. and Evans C. Person-centred Care in Dementia at the End of Life: A Scoping Review and Concept Analysis. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Sleeman, K., Timms, A., Gillam, J., Anderson, J., Harding, R., Sampson, E. and Evans C.¹Priorities and Opportunities for Palliative and End of Life Care in National Health Policies: A Documentary Analysis. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Yorganci, E., Sampson, E.L., Gillam, J., Aworinde, J., Leniz, J., Thoms, L., Cripps, R., Stewart, R., and Sleeman K. Quality Indicators for Palliative Care of Older, Frail People and People with Dementia Using Routinely Collected Electronic Datasets: A Systematic Review. 17^th World Congress of the European Association for Palliative Care, 6-8^th October 2021 (online)

Evans CJ, Aworinde J, Candy B, Mughal R, Anderson J, Harding R, Sampson E, on behalf of the EMBED-Care programme. ‘A logic model of the evidence from a systematic meta-review for integrated palliative dementia care to optimise quality of life for people with dementia nearing the end of life’ 11^th World Research Congress of the European Association for Palliative Care, May 2020, Palermo, Italy

EMBED-Care Outputs

Outputs

EMBED-Care DEEP Summary Report

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