UCL Queen Square Institute of Neurology


Tourette Syndrome

Medline NLM definition: both multiple motor and one or more vocal tics present with tics occurring many times a day, nearly daily, over a period of more than one year. The onset is before age 18 and the disturbance is not due to direct physiological effects of a substance or a general medical condition. The disturbance causes marked distress or significant impairment in social, occupational, or other important areas of functioning. (DSM-IV, 1994)

Tourette Syndrome: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Tourette's Syndrome: information from NHS Choices

Tourette's Syndrome: information from Patient UK website

Pubmed Medline search on Tourette Syndrome


Support Groups

Tourettes Action
Their vision is for people with TS to receive the practical support and social acceptance they need to help them live their lives to the full. They deal with all forms of TS, including the most challenging, to the best of their ability. Information about Tourette’s, including for parents and schools. Some of the information is aimed at young people.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.