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Progressive Supranuclear Palsy

Medline NLM definition: A degenerative disease of the central nervous system characterized by balance
difficulties; OCULAR MOTILITY DISORDERS (supranuclear ophthalmoplegia); DYSARTHRIA; swallowing difficulties; and axial  DYSTONIA. Onset is usually in the fifth decade and disease progression  occurs over several years. Pathologic findings include neurofibrillary degeneration and neuronal loss in the dorsal MESENCEPHALON; SUBTHALAMIC NUCLEUS; RED NUCLEUS; pallidum; dentate nucleus; and  vestibular nuclei. (From Adams et al., Principles of Neurology, 6th ed,  pp1076-7)

Progressive supranuclear palsy: information from the NHS website

Progressive Supranuclear Palsy: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Progressive Supranuclear Palsy: information from NORD, the National Organization for Rare Disorders (US site)

PubMed Medline search on Progressive Supranuclear Palsy
 

Support groups

The Progressive Supranuclear Palsy (PSP Europe) Association
The PSP Association is the only national organisation in the UK dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Cortico Basal Degeneration (CBD), and those who care for them.

CurePSP
CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP, CBD, MSA, and related diseases. (US site)

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.


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