UCL Queen Square Institute of Neurology


Neuromyelitis Optica (NMO)

Medline NLM definition of Neuromyelitis Optica: A syndrome characterized by acute OPTIC NEURITIS in combination with acute MYELITIS, TRANSVERSE. Demyelinating  and/or necrotizing lesions form in one or both optic nerves and in the spinal cord. The onset of optic neuritis and myelitis may be simultaneous or separated by several months. (J Neurol Neurosurg Psychiatry 1996 Apr;60(4):382-387)

Neuromyelitis Optica: information from the NHS website

Optic Neuritis: information from Patient UK website

Neuromyelitis Optica: information from NHS Direct Wales

Neuromyelitis Optica: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke information (US site)

Neuromyelitis Optica: information from NORD, the National Organization for Rare Disorders (US site)

PubMed Medline search on Neuromyelitis Optica

Support Groups

Carers UK
As the UK's only national membership charity for carers, Carers UK is both a supportive community and a movement for change.

Counselling Directory
Factsheets, FAQs and how to find a counsellor or psychotherapist near you.

Diagnostic and Advisory Service for Neuromyelitis Optica
The NMO service at John Radcliffe Hospital in Oxford, one of the UK's two national referral centres, brings together expertise in diagnostics and clinical management to improve outcomes for this often isolated group of patients.

Guthy Jackson Charitable Foundation
The Guthy-Jackson Charitable Foundation is dedicated to funding research to understanding the pathophysiology and biochemistry of NMO.

This service aims to ensure early correct diagnosis and treatment of adults and children with NMO and to provide education and support persons affected by NMO.

NMO-UK Research Foundation
A charity for patients with NMO.

Royal National Institute for the Blind (RNIB)
UK charity offering information, support and advice to over two million people with sight problems.

Transverse Myelitis Society (TMS)
This charity exists to assist members through the provision of information, personal support and financial assistance.

The Transverse Myelitis Association (TMA)
This US not-for-profit international organization is dedicated to the support of children, adolescents, and adults with a spectrum of rare neuro-immune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM), including Acute Flaccid Myelitis (AFM).

The Walton Centre Liverpool
The NMO service provided by one of the UK's two national referral centres consists of a dedicated multidisciplinary team providing a specialist service for patients with NMO and aims to deliver a comprehensive service for patients.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.