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Glycogen Storage Disorders: information from Patient UK website
Exercising with McArdle Disease: UCLH patient leaflet written by the McArdle Clinic team at the National Hospital for Neurology and Neurosurgery. It is intended for patients (or their families or carers) under the care of the team at this hospital.
Exercise and McArdle Disease: UCLH patient leaflet written by the McArdle Clinic team at the National Hospital for Neurology and Neurosurgery. It is intended for patients (or their families or carers) under the care of the team at this hospital.
McArdle Clinic Walking Assessment: UCLH patient leaflet written by the McArdle Clinic team at the National Hospital for Neurology and Neurosurgery. It is intended for patients (or their families or carers) under the care of the team at this hospital.
Support Groups
AGSD-UK provides support and help for individuals and families affected by Glycogen Storage Disease (GSD). They put people in contact with others to reduce isolation, providing information through their website, books, leaflets and newsletters, and hold conferences and workshops.
Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.
Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.
NHS Inform: brain, nerves and spinal cord
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.