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Dystonia

Medline NLM definition of dystonia: an attitude or posture due to the co-contraction of agonists and antagonist muscles in one region of the body. It most often affects the large axial muscles of the trunk and limb girdles. Conditions which feature persistent or recurrent episodes of dystonia as a primary manifestation of disease are referred to as DYSTONIC DISORDERS. (Adams et al., Principles of Neurology, 6th ed, p77).

See also: Blepharospasm, Laryngeal DystoniaMeige Syndrome.

Dystonias: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site).

Dystonia: information from the NHS website.

Dystonia: information from Patient UK website.

Dystonia: information from NORD, the National Organization for Rare Disorders (US site).

PubMed Medline search on Dystonia.

Support Groups

The Dystonia Society
Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.


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