UCL Queen Square Institute of Neurology



Hearing Disorders

Medline NLM definition of Meniere's disease: A disease of the inner ear characterized by vertigo, tinnitus, and fluctuating hearing loss often accompanied by fullness in the affected ear. ENDOLYMPHATIC HYDROPS (swelling of the endolymph-containing structures) is the main pathologic finding.

Medline NLM definition of tinnitus: Sounds that are perceived in the absence of any external noise source which may take the form of buzzing, ringing, clicking, pulsations, and other noises. Objective tinnitus refers to noises generated from within the ear or adjacent structures that can be heard by other individuals. The term subjective tinnitus is used when the sound is audible only to the affected individual. Tinnitus may occur as a manifestation of COCHLEAR DISEASES; VESTIBULOCOCHLEAR NERVE DISEASES; INTRACRANIAL HYPERTENSION; CRANIOCEREBRAL TRAUMA; and other conditions.

Hearing loss: information from the NHS website

Hearing problems: information from Patient UK website

Meniere's disease: information from Patient UK website

Meniere's disease: information from the NHS website

Tinnitus: information from Patient UK website

Tinnitus: information from the NHS website

Tinnitus: information from Action on Hearing Loss

Tinnitus: information from NORD, the National Organization for Rare Disorders (US site)

PubMed Medline search on Meniere's disease
PubMed Medline search on Tinnitus

Support Groups

Action On Hearing Loss
Formerly the RNID, and now incorporating Deafness Research UK (the medical charity for deaf and hard of hearing people) this is the largest charity, representing the 8.7 million deaf and hard of hearing people in the UK. Provides a range of services, offers advice and support to people with hearing loss and supports research.

British Deaf Association
A member-led organisation, our work is focused on achieving equality for Deaf people through community empowerment, membership and campaigning.

British Tinnitus Association
Supports a nationwide network of local self-help groups; sponsors tinnitus research projects; promotes education and awareness campaigns; produces a quarterly magazine for members.

Meniere's Society
The Ménière's Society (UK) can help you with information and support. Join the Society and receive a comprehensive information pack, a quarterly magazine, SPIN and a contact list.

Menieres.org  (US site)
Menieres.org was founded to provide a "home" of support for those who are suffering from Meniere's Disease. Their primary goal is to provide a warm home on the web for you to lean a shoulder on, share your tips and experiences with other sufferers.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.