All HIV-exposed infants and any children diagnosed with HIV (<16 years), should be reported to ISOSS using the secure online portal. Enhanced data collection takes place for all vertical transmissions in England-born children. All cases are looked at by the Infectious Diseases in Pregnancy Screening Programme's HIV Clinical Expert Review Panel, in order to establish the circumstances surrounding the transmissions to inform national guidelines and policy.
Long-Term Follow-Up of Paediatric HIV
Following notification of any diagnosed children to ISOSS, all children are followed-up until transition to adult care by the Children's HIV and AIDS Reporting System (CHARS)
All infants born to women who are treated for syphilis/require treatment in pregnancy are reported to ISOSS, as well as any cases of congenital syphilis. Enhanced data collection takes place for all congenital syphilis cases in England-born children. All cases are looked at by the Infectious Diseases in Pregnancy Screening Programme's Congenital Syphilis Clinical Expert Review Panel.
If you are seeing or have seen a child with congenital rubella, please either use the BPSU Orange Card to report a case and we will be in touch or alternatively contact the ISOSS team directly using nhs.net (firstname.lastname@example.org).