Paediatric Reporting

HIV Surveillance

All HIV-exposed infants and any children and young people diagnosed with HIV (seen by paediatric services), should be reported to ISOSS using the secure online portal.  Enhanced data collection is carried out for all vertical transmissions in England-born children.  All cases are reviewed by the Infectious Diseases in Pregnancy Screening Programme's HIV Clinical Expert Review Panel, in order to establish the circumstances surrounding the transmissions to inform national guidelines and policy.

Long-Term Follow-Up 

Following notification of any diagnosed children and young people to ISOSS, all patients seen for paediatric HIV care in England are followed-up until transition to adult care by the Children's HIV and AIDS Reporting System (CHARS)

Syphilis Reporting

All infants born to women who are treated for syphilis/require treatment in pregnancy are reported to ISOSS, as well as any cases of congenital syphilis.  Enhanced data collection is carried out for all cases of congenital syphilis in England-born children.  All cases are reviewed by the Infectious Diseases in Pregnancy Screening Programme's Congenital Syphilis Clinical Expert Review Panel in order to establish the circumstances surrounding the transmissions to inform national guidelines and policy.

Congenital Rubella