Dementia Research Centre


Upcoming FTD Support Group Meetings

The FTD Support Group meets several times a year in the UK and has an annual seminar open to professionals and carers.

We also facilitate regional meetings, assisted by members of the support group. 

Please note that you assume full responsibility and risk when attending support group meetings, and also in the use of the information contained on our website, in our newsletters and at support group meetings.

Future Meetings at UCL 

7th July, 2016

The venue for this meeting is the front Events Quadrangle Venue on the UCL Gower St site, WC1E 6BT (please see map for directions - opens new window). The meeting is scheduled from 11am -2pm, with coffee available from 10.30am and lunch provided.

The theme of the meeting will be Medical –Legal Issues. We will be joined by James Mabey, a solicitor specialising in Private Client law and  experienced in the preparation of Lasting Powers of Attorney and Advance Statements. He advises on all aspects of their use, benefits, registration and other issues that often arise.

James will give a presentation to help dispel some myths and outline the benefits of making these documents and the processes involved.

Past Meetings at UCL

Date                                                       Location
23rd May 2016 We held a FTD Support Group Carers' meeting where Ione Woolacott discussed her research and Jon Rohrer, Susie Henley and Jill Walton hosted a Q+A about FTD.
25th January, 2016

The FTDSG Annual Seminar 2016 took place on the 10th March, 2016.

Catch up the presentations from the seminar.

25th January, 2016 Bethany Coad is a PhD researcher at Cardiff University and she spoke  to family members about their experiences of empathy changes in FTD and the impact these have had on them and their caregiving experience.
18th November, 2015 We held a Joint Carers' Meeting where Dr Liz Sampson who is a Senior Clinical Lecturer at the Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London joined us to share her expert knowledge on palliative and end of life care in dementia.
13th July, 2015
We hosted a London Carers Meeting on the 13th July on the UCL campus (map - opens new window). We were very pleased to welcome Emilie Brotherhood and Dr Seb Crutch who spoke about their new project. To watch their presentation, view our videos and presentations (opens new page).

London meetings are coordinated by Jill Walton, please contact her for more information (opens new page).

You can catch up on any support group meetings you missed by viewing our 'Videos and Presentations' (opens new window). The FTDSG Annual Seminar 2014 (opens new window) and FTDSG Annual Seminar 2015 (opens new window) are also available online.

Regional Meetings

Location                Topics & Date
West Sussex

Wednesday 11th May,11am at The Beech Hurst Harvester, Beechurst Gardens, Butlers Green Road, Haywards Heath RH16 4BB.

Meet initially for coffee, but those who wish could stay on for lunch afterwards. The Beech Hurst Harvester is on the B2272 on the right just as you come into Haywards Heath from the Cuckfield direction. There’s a big car park for anyone planning to drive. 

Please could anyone interested contact Jill either by email, jillbutcher@onetel.com  or tel. 01444 451837 or text on 0786 768 3280. [Jill asks you to note that messages left with antone other than herself may not be passed on].

Scotland   Please contact Anne Miller - email:milleranne89@googlemail.com, tel no: 01436 268476 for details of monthly meetings in the XXXX area
Please contact Helen Griffiths - tel: 0161 716 4505 for details of monthly meetings in the Stockport area
Liverpool Please contact Mary Dawber - email mary1246@hotmail.co.uk, tel: 01625 879104 for details of upcoming meetings.
South West [ Lyme Regis and Lifton] Please contact Penelope Roques - tel: 01297 445488, for details of forthcoming meetings. Next meeting scheduled for Dec 3 at the Arundell Arms, Lifton, Devon , P16 0AA. Meet from 12.30pm, buy your own lunch. Please contact Penelope to confirm attendance. [ Arundell Arms contact no is  01566 784666]
Cornwall  Please contact Cindy Reeve - tel: 01726 71562 for details of forthcoming meetings
Cambridge Please contact Val Freestone - email: valerie.freestone@addenbrookes.nhs.uk, tel: 01223 768005, for details of the annual Addenbrookes meeting
Herts/Beds Wednesday June 1st for our next coffee morning. It will run from 10 – 12 in the morning. Please contact Richard Pleydell Bouverie - email by preference: richard@lawrenceend.com , tel. 01438 833022 for details of forthcoming meetings
Surrey Please contact  Karen Tapson on 07525597503 or email Karen.Tapson@alzheimers.org.uk for details of forthcoming, bi-monthly meetings
Kent/Sussex Please contact  Jane Smissen-Bell on 01323 504156 or email 6bells.jane@gmail.com for details of forthcoming meetings.

We host a variety of regional meetings - for details on your closest meeting / representative please view the Regional Meeting Contact List (opens new window).