COVID-19 update: If you have an appointment for our cognitive clinic these appointments are currently almost all being undertaken by telephone. We will try to telephone you as close to your appointment as possible but this may be some time earlier or later as there can be delays or difficulties in getting through. Thank you for your understanding. Please be aware that the call will have “number withheld” - the clinic staff will identify themselves on the call.
Please do not physically attend the hospital for your clinic appointment unless you are specifically asked to do so. If you are unwell, and have any symptoms suggestive of coronavirus please do not attend the hospital unless absolutely necessary, please contact NHS 111.
The Cognitive Disorders Service
The Cognitive Disorders Service runs in parallel with the Dementia Research Centre (DRC), part of the Department of Neurodegenerative Disease at the UCL Institute of Neurology (ION). The clinical and research components form a national centre of excellence for diagnosis and treatment of patients with cognitive problems, and the group is recognised internationally for ground-breaking research in dementia.
All forms of cognitive disorder are seen; however, we have particular expertise in young onset dementia, familial dementias and unusual degenerative diseases. Progressive disorders such as Alzheimer’s disease (AD), vascular dementia or frontotemporal dementia are commonly seen, but other less common disorders also assessed including limbic encephalitis, hereditary leucodystrophies and acquired cognitive problems such as amnesia, aphasia, visuospatial problems, apraxia, facial recognition and executive dysfunction due to varying aetiologies.
How to make a referral
The clinic has a national referral base and has agreed referral pathways with the local CCGs. Referrals are accepted from primary, secondary and tertiary care.
Referrals can be addressed to:
Cognitive Disorders Clinic, Box 16, Dementia Research Centre, 8-11 Queen Square, London WC1 3BG.
Emailed to: email@example.com
or faxed to 020 3448 3104
For general practioners referring patients, referrals must be submmitted via ERS (NHS E-Referrals portal)
Daniel Mason: 020 3448 3171 Secretary to Professors Rossor, Fox, Warren and Dr Foulkes
Locum Secretary: 020 3448 3011 Secretary to Professor Schott, Dr Cath Mummery
Marlene Bell 020 3448 3639 Secretary to Dr Jonathan Rohrer and Dr Novraj Dhanjal
What the clinic visit involves
Patients are assessed in a consultant-led multidisciplinary clinic, including neurology, psychiatry, psychology, imaging, specialist nurse, neurophysiology and allied disciplines.
Where appropriate, patients are investigated on the same day with MRI, psychology and EEG
This is a scan of your brain which takes place within a special (noisy) machine and the process should take under an hour. You will be asked some questions to make sure there is no reason why you cannot have a scan (e.g. a pacemaker)
These are tests of memory and thinking and may take around one and a half hours – you will be tested on your own but there is a waiting area in psychology department
This is a record of the brain’s electrical activity, and involves special electrodes being attached, painlessly to the scalp. It may take an hour
If necessary patients can be admitted for further investigations to the Day Case Unit at the NHNN and we have a dedicated lumbar puncture clinic for rapid access to spinal fluid assessment. This can be an important part of the diagnostic process. Other modalities of imaging are also available.
In addition to clinical care, all patients are offered the opportunity to participate in clinical trials and other studies at the DRC.
Clinic times and consultants
Monday AM. Led by Professors Nick Fox, Martin Rossor, Jason Warren, Jonathan Schott. Held at Basil Samuels OPD, Ground Floor, NHNN)
Dr Alexander Foulkes and Dr Novraj Dhanjal also run clinics fortnightly on Monday mornings. Clinics are held on 2nd Floor OPD, Royal London Hospital for Integrated Medicine
Tuesday PM - led by Dr Jonathan Rohrer, and Dr Cath Mummery. Held at Basil Samuels OPD, NHNN
Katy Judd, Consultant Nurse
Frankie O’Shea, Advanced Nurse Practitioner
Anna Balones, clinical nurse specialist
Jane Douglas, Senior clinical Research Nurse.
Contact number: 020 3448 3370/83467 or via email to: firstname.lastname@example.org
Rare Dementia Support coordinator: Nikki Zimmermann
Counselling and Diagnosis in Dementia is a nurse led information and advice service offering advice on how to access information on legal and financial matters, and the role of statutory and voluntary support services.
The CANDID service is run by Katy Judd and Frankie O’Shea, is available to patients and families registered with an NHS specialist Cognitive Clinic and associated healthcare professionals. It aims to enhance mutual understanding between patients and doctors through:
Face to face consultations at clinic appointments
A telephone helpline service between appointments and following discharge to local services
Nurse led therapeutics appointment
In addition, psychological intervention is available for patients and their carers, where appropriate with a clinical neuropsychologist, Kirsten Perkins.