Brain Sciences


Grants Awarded to the Centre

Measuring Success in Co-Production

Co-Production Collective PI: Aikaterini Fotoupoulou, a.fotopoupoulou@ucl.ac.uk

Team: Tom Plender (FND Action Charity); Georgia Pavlopoulou (UCL); Venessa Bobb-Sway (A2ndVoice); Christin Henein (UCL); Dawn Golder (FND Hope); Michael Moutoussis (UCL); Natalie Marchant (UCL); Indy Sira (Voices of Colour).

Summary of proposal:

The project is led by an inter-disciplinary collective of UCL researchers and clinicians, also leading the newly founded Centre for Equality Research in Bran Sciences, and dedicated to promoting equality, diversity and inclusion (EDI) in mental and neurological health research. This project aims to collaboratively develop and evaluate a co-production approach to strategic, inclusive decision-making in mental health and wellbeing research. Towards realising this aim, the project team includes partners with representatives from, and allies of, minority and marginalised communities of people with lived, or living, experience of mental health and related areas of intersectionality, such as neurodiversity, and co-produced the proposed project, with the following objectives:

(i) Co-produce strategic priorities/themes for the centre, particularly for key grant applications (‘Doing Together’)

(ii) Co-evaluate our shared learning from the process of co-production (‘Learning by Doing Together’)

(iii) Co-disseminate, together with the Co-Production Collective, our reflective guidelines (‘Sharing and Beaconing together’).

Multi-Stakeholder Engagement to Promote Inclusive Research Practices

UCL Grand Challenge Justice & Equality Special Initiative 2023-24 PI: Natalie Marchant, n.marchant@ucl.ac.uk

Team: Anna Cox (UCL), Aikaterini Fotoupoulou (UCL), Lynis Lewis (NOCLOR), Ione Fraser (community collaborator), Lorraine Cezair-Phillip (community collaborator), Naheed Mukadam (UCL), Jabeer Butt (Race Equality Foundation), Harpreet Sihre (UCL).

This project aims to make dementia research more inclusive by creating a roadmap for inclusive recruitment practices that addresses the challenges experienced by researchers and ethnically minoritized communities using co-production methods.

Greater participation of ethnically-minoritized groups in dementia research is urgently needed to understand the reasons for differences in vulnerability and survival, and to provide better interventions. It is imperative to know what barriers ethnically-minoritized communities experience that prevent their participation in dementia research projects. It is also necessary to know what barriers researchers experience that prevent them from using inclusive recruitment practices. Knowing how to work collaboratively with multiple stakeholders will improve inclusive recruitment practices.

Equity in human research means that research studies are conducted with a diverse population that represents the true demographics of the people who have the disease in the “real world.”