Raising the profile and research into α1-antitrypsin deficiency
Alpha-1 Awareness is a charity formed to provide information and support to sufferers of α1-antitrypsin deficiency. They provide support for Alpha-1 patients and their carers, improve the understanding of Alpha-1 for both patients and medical professionals and fund vital research into this disease.
Professor Lomas and his team at UCL, have received generous donations of £45,000 over the last 3 years from Alpha-1 Awareness, which has enabled our group to advance understanding of the polymer formation that underlies α1-antitrypsin deficiency.
On Monday 3rd February 2020, Alan and Emma Wooler of Alpha-1 Awareness came to UCL (University College London) to present Professor David Lomas with a cheque for £10,000 to go towards his research for a cure for Alpha-1.
“We are very pleased that over the last 3 years we have been able to donate £45,000 to Professor Lomas and his team at UCL, who have made some great advancements." 5.2.2020 Alan Wooler
An Alpha-1 clinic has been established at the Royal Free Hospital in North London. The clinic is run by Professors John Hurst, Bibek Gooptu and David Lomas and has been designed to cover all aspects of α1-antitrypsin deficiency. It is a joint clinic run by hepatologists (liver doctors) and respiratory physicians.
The clinic also offers opportunities to take part in research studies aimed at understanding α1-antitrypsin deficiency and developing a cure (Lomas et al, J. Hep. (2016), 65 (2) : 413-424)