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Stargardt's Day 2017

On Saturday 18th March 2017, we held a meeting in London for people with Stargardt disease to bring people together to provide the latest information and share people's experiences.

Stargardt's Day Logo

18 March 2017

The aims of Stargardt's Day were to:

  • Meet one another and share both experiences as well as hints and tips for daily living 
  • Find out about Stargardt disease and some of the research being undertaken to address it from researchers and clinicians at the UCL Institute of Ophthalmology and Moorfields Eye Hospital
  • Discuss what people feel should be the priorities for the future, with the opportunity to share these with clinicians, researchers and charities supporting people with Stargardt disease and their families

Watch the talks from Stargardt's Day:

Full playlist available on YouTube

YouTube Widget Placeholderhttps://youtu.be/MGRQFEQekz8

 Stargardt's Day Photos:

Macular Society UCL Researchers RP Fighting Blindness Dr Michael Crossland Speaking Stargardt's Day Patient Panel Stargardt's Panel Member Toby Evans Stargardt's Panel Member Rob McCann Attendees testing the GiveVision magnifying headset Attendees taking part in small group discussions Metro Blind Sport Stargardt's Panel Member Bhavna Tailor Attendees write down their hints and tips for daily living Prof James Bainbridge speaks Dr Anai Gonzalez-Cordero speaks Dr Rupert Strauss speaks Dr Andi Skilton closes discussions Prof Andrew Webster speaks

Links from the day:

 

Stargardt's Connected - a charity by patient's to support patients and their families

Agenda:

Sat 18 March 2017 - ect.venues Victoria

TimeSpeaker/ChairPresentation
10:45 - 11:00Prof James Bainbridge Welcome & introductions
11:00 - 11:20Prof Andrew WebsterWhat does current and future diagnosis and management of Stargardt’s disease look like?
11:20 - 11:40Dr Michael Crosslandwhat is already available to help me with Stargardt disease
11:40 - 12:00 Q&A
12:00 - 13:00Ms. Rea Mattocks (facilitator)

Stargardt's Panel Discussion - talks by people affected by Stargardt's disease speaking from childhood diagnosis to working-age life:

  • Bhavna Tailor
  • Ruby Luck
  • Toby Evans
  • Robert McCann
13:45 - 15:00Dr. Andi SKilton (facilitator)Information Exchange - small group discussions about what people with Stargardt disease need between attendees and participating support organisations
15:10 - 15:30Prof James BainbridgeGene and Cell Therapies for Stargardt disease - where are these at?
15:30 - 15:45Dr Anai Gonzalez-CorderoInduced pluripotent stem cells for Stargardt’s disease – why recreate Stargardt’s disease in the lab? 
15:45 - 16:00Dr Rupert StraussIs there a possibility of a drug therapy for Stargardt's disease?
16:00-16:20Dr Andi SkiltonQ&A and closing remarks and next steps

Thank you to the following organisations who took part:

Funded via:

NIHR logo