How the platform works

How to access and contribute to our data collection

Diagram showing the principle steps in contributing data to, or applying to use data within the TB-IPD

We are keen to incorporate as many relevant datasets into the IPD as possible, in order that the added value from analysing the pooled data is as high as possible. The WHO will periodically publish calls for new datasets, but people with data may contact us at any time.

Data Contributors will need to:

• Contact the UCL team
• sign a 

  Data Sharing Agreement

  Data Sharing Agreement
   with UCL, that both protects their rights regarding the data, and also confirms that they have the authority and relevant ethical permissions to share the data
• ensure that there is no Personal Data that can directly identify an individual
• align the data as far as possible with the Data Dictionary being used by the IPD

Researchers wishing to use the IPD Data will need to:

• complete a 

  Data Access Request Form

  Data Access Request Form
   in which their proposed questions and analyses are explained, and reassurance given that they have appropriate permissions and systems to use the data ethically and securely
• have their proposal approved by a Data Access Committee that will meet periodically
• sign a 

  Data Access Agreement

  Data Access Agreement
   with UCL, which will include conditions of use such as publishing results using Open Access, and how to acknowledge the IPD and the Data Contributors

Documents

• Data Sharing Agreement

  Data Sharing Agreement
  • Version 2.0 22 Dec 2023 (to be used by Data Contributors who wish to add datasets to the IPD)

• Data Access Request Form

  Data Access Request Form
  • Version 1.0 20 Jan 2023 (to be used by Researchers to request data for analysis)

• Data Access Agreement

  Data Access Agreement
  • Version 1.0 20 Jan 2023 (to be used by Researchers after the request for data has been approved, and prior to release of the data

• Data Dictionary of 2019 dataset

  Data Dictionary of 2019 dataset
  • Version 1.0 - 3.0 20 Jan 2023 (for reference for both Data Contributors and Researchers).

• Data Dictionary of 2021 dataset

  Data Dictionary of 2021 dataset

• Data Access Committee Terms of Reference PDF

  Data Access Committee Terms of Reference PDF
  • Version 2.0 13 July 2023
• Summary of datasets within the IPD

*Data Dictionary: Please check with Asset Administrator before preparing data or making requests.

Whilst we are happy to receive comments on these documents, these versions are in current use and cannot be amended for specific data contributions/releases.