Realising patient and NHS benefits from health and care data: from policy to practice
22 January 2020
CASMI, Health Data Research UK and the Academy of Medical Sciences ran a joint event entitled ‘Realising patient and NHS benefits from health and care data: from policy to practice’.
Attendees at the event included patient and public representatives, colleagues from the NHS, industry, academia and policy sectors.
The purpose of the event was to ensure that we derive appropriate value for all from the use of health and care data. To do so, the meeting brought together key stakeholders to share perspectives, and to define practical steps that can be applied by organisations that manage and hold UK health data and/or provide research services. Discussions considered approaches to realise the breadth of benefits – from using data to develop new medicines or devices through to financial reimbursement to the NHS for access to and use of health data.
The aim was to produce a practical framework that can be used by the newly formed Health Data Research Hubs to enable their future sustainability, support improvements to the range and quality of data available for research and earn public trust.