We have collated information relating to palliative care that may be of use during the current time.
Palliative Care Research
These are papers from the Marie Care Palliative Care Research Department at UCL.
- https://doi.org/10.1177/0269216320910934. Palliative Medicine
- Harrison Dening K, Sampson EL, De Vries K. (2019) Advance care planning in dementia: recommendations for healthcare professionals. Palliative Care https://doi.org/10.1177/1178224219826579
- Davies N, Walker N, Hopwood J, Iliffe S, Rait G, Walters K. (2019) A “separation of worlds”: The support and social networks of family carers of people with dementia at the end of life, and the possible role of the internet. Health and Social Care in the Community https://doi.org/10.1111/hsc.12701
- Davies N, Hopwood J, Walker N, Ross J, Iliffe S, Walters K, Rait G. (2019) Designing and developing a co-produced theoretical and evidence-based online support for family caregivers of people with dementia at the end of life. BMC Palliative Care https://doi.org/10.1186/s12904-019-0455-0
- Sawyer JM, Sallnow L, Kupeli N, Stone P, Sampson EL (2019) Social networks, social capital and end-of-life care for people with dementia: a realist review BMJ Open http://dx.doi.org/10.1136/bmjopen-2019-030703
It is important that clincians recognise when their patients are dying so they can provide appropriate care, avoid unnecessary treatments, and allow families to prepare for the person’s death. Accurate recognition of dying is a difficult skill for healthcare professionals at all levels of experience.
- White N, Oostendorp L, Tomlinson C, Yardley S, Ricciardi F, Gökalp H, Minton O, Boland J, Clark B, Harries P, et al. ( 2019) Online training improves medical students’ ability to recognise when a person is dying: the ORaClES randomised controlled trial. Palliative Medicine https://doi.org/10.1177/0269216319880767
- White N, Oostendorp LJ, Minton O, Yardley S, Stone P (2019) Palliative care training in undergraduate medical, nursing and allied health: a survey. BMJ Supportive & Palliative Care. doi: 10.1136/bmjspcare-2019-002025
- White, N, Kupeli, N, Vickerstaff, V. Stone P. (2017) How accurate is the ‘Surprise Question’ at identifying patients at the end of life? A systematic review and meta-analysis. BMC Medicine. https://doi.org/10.1186/s12916-017-0907-4
- White N, Reid F, Harris A, Harries P, Stone P (2016) A Systematic Review of Predictions of Survival in Palliative Care: How Accurate Are Clinicians and Who Are the Experts? PLOS ONE https://doi.org/10.1371/journal.pone.0161407
- Finucane AM, Jones L, Leurent B, Sampson EL, Stone P, Tookman A, Candy B. (2020) Drug therapy for delirium in terminally ill adults. Cochrane Database of Systematic Reviews https://doi.org/10.1002/14651858.CD004770.pub3
- Vivat B, Bemand-Qureshi L, Harrington J, Davis S, Stone P. (2019) Palliative care specialists in hospice and hospital/community teams predominantly use low doses of sedative medication at the end of life for patient comfort rather than sedation: Findings from focus groups and patient records for I-CAN-CARE. Palliative Medicine https://doi.org/10.1177/0269216319826007
- Low J, Rohde G, Pittordou K, Candy B, Davis S, Marshall A, Stone P. (2018) Supportive and palliative care in people with cirrhosis:International systematic review of the perspective of patients, family members and health professionals. Journal of Heptology. https://doi.org/10.1016/j.jhep.2018.08.028
- Hudson BF, Best S, Stone P, Noble TB. (2019) Impact of informational and relational continuity for people with palliative care needs: a mixed methods rapid review. BMJ Open. http://dx.doi.org/10.1136/bmjopen-2018-027323
End-of-life care in care homes
Older adults residing in care homes are particularly vulnerable. At the end of life, caring for this population, many of whom will have dementia and multiple conditions, may be challenging. However, in the context of COVID-19 it is vital to ensure they can remain in their care home but receive optimal management of any symptoms they may experience.
- Sampson et al. (2018) Living and dying with advanced dementia: A prospective cohort study of symptoms, service use and care at the end of life. Palliative Medicine. https://doi.org/10.1177/0269216317726443
- Moore et al. (2017) Implementing the compassion intervention, a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study. BMJ Open. http://dx.doi.org/10.1136/bmjopen-2016-015515
- Davies et al. (2018) Guiding practitioners through end of life care for people with dementia: The use of heuristics. PLOS ONE. https://doi.org/10.1371/journal.pone.0206422
Marie Curie is a charity that supports people living with terminal illness and their families in the UK
Centre for Evidence Based Medicine (CEBM) a the University of Oxford has collated a range of evidence.
Royal College of Physicians provide information for the public about understanding treatment and outcomes in hospital and critical care
Collated list of some key resources for COVID-19 in palliative care:
COVID Trauma Response Working Group provides evidence-based resources for health staff coordinating psychosocial responses to COVID
Health Education England have produced a clinical guide for the management of palliative care in hospital during the coronavirus pandemic