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Join Dementia Research

10 September 2015

UCL staff are encouraged to sign up for

Join Dementia Research joindementiaresearch.nihr.ac.uk/" target="_self">Join Dementia Research, a new nationwide online and telephone service based at UCL, which is seeking participants in dementia research studies.

The service, which is led by Professor Martin Rossor, NIHR National Director for Dementia Research and Professor of Clinical Neurology at UCL, is open to anyone aged 18 and over with or without dementia. It is also possible to sign up someone else for the service, providing consent has been given.

Participants will be able to see which studies their information matches to, and can also express an interest in finding out more about studies. However, there is absolutely no obligation to take part in any of the studies. Current research studies range from clinical trials of new treatments to surveys identifying what works in improving the quality of life of people with dementia.

Dementia affects over 850,000 people in the UK, but currently only about 5% of people with dementia take part in research. There are numerous questions about the cause, diagnosis, treatments, and best care for which there are no clear answers yet. Research into dementia will help find these answers.

Getting involved

You can register for the service by visiting the Join Dementia Research website or by contacting one of the charities' helplines Alzheimer's Research UK: 0300 111 5 111 and Alzheimer's Society: 0300 222 1122.

Participants who do take part are asked to encourage their friends, family and colleagues to sign up to the service and to talk about the service to anyone who has dementia or who is caring for someone with dementia.

Join Dementia Research is funded by the Department of Health and delivered in partnership with the National Institute for Health Research, Alzheimer Scotland, Alzheimer's Research UK and Alzheimer's Society.

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