Current research projects
With help and agreement from patients, research at the Royal Free investigates the fundamental causes of PID, the complications and the long-term management of these lifelong diseases.
- Cognitive Behavioural Therapy (CBT) in PID
- UKPIN/ESID registry: Long-term accumulation of clinical data in Registry) family study (to help identify genetic defects causing PID.
- Prion study: Long-term national study to assess risk of patients being 'infected' by prions in blood products.
- JMF QoL study: Measuring improvements in quality of life after immunoglobulin therapy.
- CGD studies: Investigating chemical interactions in cells from CGD patients.
- BioREsources study: Collecting DNA from patients to search for new genetic causes of PID.
- STILPAD Study: Multi-centre EU study documenting the effect of various treatments on lung inflammation in PID.
- Gammatrack: An observational study on effects of regular Flebogamma.
- Grifols observational study on effects of Flebogamma
- Respiratory study: Diagnosing and monitoring types of lung infection.
- CMV study: Investigating the role of cytomegalovirus (CMV) in bowl and liver inflammation.
- Liver study: Testing whether toxins from the bowel can cause liver disease in PID.