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Institute of Epidemiology & Health Care

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Data Sharing

datasharing

# Phase 11 now available #

We are committed to maximizing the use of Whitehall II data to advance scientific knowledge. 

We welcome proposals for collaborative and external projects for bona fide research. We make data as widely available as possible while strongly protecting confidentiality, and making sure that we maintain the reputation of the study, its funders and its participants.  All proposals are reviewed by the data sharing committee.

For aggregate data, please contact the researcher you wish to collaborate with.

For individual-level data, we follow a controlled access model for sharing, which is described in our Whitehall II data sharing policy (PDF). This policy conforms to the MRC Policy on Research Data Sharing

For general data sharing enquiries, please contact whitehall2@ucl.ac.uk
For projects involving genetics, please contact Dr Meena Kumari

Please note that from the 1st September 2017 we will charge a modest fee to cover the administrative costs associated with the management and generation of the bespoke datasets.

Data Sharing Committee

The Data Sharing Committee (DSC) comprises the Whitehall II study Director and PI, co-Investigators and associated senior study researchers, statisticians and the core operational team. 

The committee meet once a month to review the scientific merit and the suitability of the Whitehall II Study, for the data sharing requests as well as the ability of the applicants(s) to deliver on the project.  The proposals can be approved fully, or approved pending further information or rejected, with an explanation to the applicant.

Data Sharing Committee Members 
Prof Mika Kivimaki, Director and PI, The Whitehall II study   
Professor Eric Brunner, (Co-PI) 
Professor Archana Singh Mantoux, (Co-PI) 
Professor Jenny Head, (Statistician) 
Professor Annie Britton, (Epidemiologist) 
Professor Meena Kumari, (Genetics studies) 
Dr Martin Shipley, (Statistician) 
Dr Adam Tabak, (Clinician and Senior Research Associate) 
Dr Severine Sabia (Senior Research Associate) 
Dr Sara Ahmadi-Abhari, (Senior Research Associate) 
Dr Jatinderpal Kalsi, Mrs Beverley Milne, Mrs Stephanie Smith (Core Study Team) 
Applying for data

For individual level data, please submit the following two documents:

  1. the WII Data Sharing  in word format (also in ).
  2. the WII Excel data dictionary with the list of variables needed for the project. Please highlight only the variable names needed for your project.

The WII research team meets monthly to evaluate all applications received. Upon approval of an application, applicants will be asked to sign the WII Data Sharing Agreement (last page of application form) and proceed with the payment.

Within two weeks of the receipt of this document and of the payment, the data manager will release an anonymised dataset, tailor-made for each project.

For aggregate data, please contact the researcher you wish to collaborate with.

Data documentation

You can obtain a detailed description of the WII variables in the following sources:

- Excel data dictionary

- Questionnaires

- Clinical Measures

On request, we can supply documentation such as copies of other WII questionnaires (FFQ, MMSE, GKQ, cortisol diaries, etc), clinical protocols and syntax of derived variables.

Payment

From the 1st September 2017 the Whitehall II study there will charge a fee of £500 + VAT for each data sharing project. This will cover the administrative costs associated with the management and generation of the bespoke dataset.

This fee will need to be paid upon approval of the application. 

To proceed with the payment, please click on the link below. You will need to have your data sharing reference number in hand.

Additional requests might incur further costs depending on the required data management time.

Data sharing in numbers

Over the last 10 years, the Whitehall II study has released aggregate and individual-level data for many research projects, including a large number of international consortia.

Up to end of May 2018 we received 242 data sharing applications (Excel file) for individual level data. Many of these applications were for external projects, ie, not involving authorship of Whitehall II researchers.

Approval rate:

  • 227 at first submission
  • 14 re-submission requested (10 received)
  • 1 refused
YearExternalCollaborations (inc. consortia)GeneticsTOTAL
2006 (pre - DS)0437
20072305
20085101126
2009371121
201076518
2011513422
201256516
2013314421
201449215
201586620
2016136423
2017196126
TOTAL969155242
See below the geographical distribution of our individual-level data transfers up to the end of May 2018:

data sharing map 2018
Any questions?