Dementia Research Centre


Rare Dementia Support

Rare Dementia Support (RDS) is a world-leading, UK-based support service led by the UCL Dementia Research Centre.

Our vision at RDS is for everyone affected by, or at risk of a rare dementia, to have access to information, tailored support, and contact with others affected by similar conditions in a space of mutual respect and understanding.

RDS supports people affected by 7 of the rare dementias, including carers and bereaved carers. These are: familial Alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA), primary progressive aphasia (PPA), Lewy body dementia (LBD) and young-onset Alzheimer’s disease (YOAD).

The RDS Team is a large team comprised of international clinical and non-clinical specialists and people affected by rare dementias, collectively working together to bring their skills and expertise in dementia research, education and support. We aim to empower, guide and inform people living with a rare dementia diagnosis and those who care about them.

Click here to visit the Rare Dementia Support website.