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Otto Wolff Lecture and Catherine Peckham Symposium
This year’s Otto Wolff Lecture and Catherine Peckham Symposium will focus on paediatric palliative care from the perspective of parents, clinicians, and researchers. Together they build the team around the ill child with the aim of ensuring that the needs of children and young people and their families are met. There will be presentations by experts on symptom management, ethical considerations, and family experiences. Emphasis will be put on care and research.
Through the Eyes of a Child
Dr Lola Solebo - TEDxLSTM
Lola Solebo is a scientist and paediatric ophthalmic surgeon. Her interest is in how we predict, and what decides outcomes for children with blinding eye diseases, and how we use this information to best help affected children. Her PhD involved a longitudinal cohort study (watching for outcomes over a period of time for a defined group) on children affected by one of the most important causes of childhood blindness: cataract. Study findings have changed clinical practice and impacted on national policy. She is about to start another study to examine how best we measure disease, and how best we use this information, for another important, rare, blinding childhood eye disease: uveitis. The work is supported by a prestigious National Institute of Health Research Clinician Scientist award, and a national clinical collaborative group she has co-founded, the Paediatric Ocular Inflammation Group. It's also supported by the affected children and their families, who have helped her every step of the way. Lola is also (alongside her partner, Mark) a parent to two girls, aged 4 and 5, who when asked what mummy does says 'She fixes children's eyes'.
My geNOME SEQUENCE
Dr Celine Lewis - Great Ormond Street Hospital and Charity
Great Ormond Street Hospital (GOSH) and UCL Great Ormond Street Institute of Child Health have created this animation for young people coming to the hospital to have their genome sequenced.
The animation is linked to the 100,000 Genomes Project. The aim of the project is to identify the underlying genetic cause for some rare diseases as well as create a new genomic medicine service for the NHS.
“We hope that the animation will make it easier for patients and families to understand this new technology and help them make decisions about whether to use it,” said Celine Lewis, Senior Research Social Scientist. To date, the animations have received over 30,000 views on You Tube and won Best Animation in the West of England Royal Television Society Awards 2018.
Invisible children the child homelessness pandemic - a time for action
Professor Monica Lakhanpaul - Great Ormond Street Hospital and Charity
Audio
The Morality of Vaccination
Professor Helen Bedford - BBC4 Moral Maze
Vaccination is crucial, but measures to improve vaccine access are far more important than making vaccination mandatory, as the social norm in the UK already leads to very high uptake of vaccines, argues Professor Helen Bedford – who ends her ‘slot’ by pointing out that we already know what works to improve access to vaccines. Helen joined Michael Buerk on his regular Radio 4 show for a lively debate.