UCL Great Ormond Street Institute of Child Health


Great Ormond Street Institute of Child Health



Published Articles and Book Chapters


  • Oostendorp L, Rajapakse D, Kelly P, Crocker J, Dinsdale A, Fraser LK, Bluebond-Langner M. Documentation of breakthrough pain in narrative clinical records of children with life-limiting conditions: feasibility of a retrospective review. J. Child Health Care. 2018 Nov 21. DOI: 10.1177/1367493518807312. Available from:  https://journals.sagepub.com/doi/full/10.1177/1367493518807312
  • Oulton K, Oldrieve N, Bayliss J, Jones V, Manning I, Shipway L, Gibson F. Using participatory and creative research methods to develop and pilot an informative game for preparing children for blood tests. Arts & Health. 2018 Sep 2;10(3):227-40. DOI: 10.1080/17533015.2017.1392329. Available from: https://www.tandfonline.com/doi/full/10.1080/17533015.2017.1392329
  • Gibson F, Kumpunen S, Bryan G, Forbat L. Insights from parents of a child with leukaemia and healthcare professionals about sharing illness and treatment information: A qualitative research study. Int J Nurs Stud [Internet]. 2018 Jul;83:91-102. DOI: 10.1016/j.ijnurstu.2018.04.008. Available from: https://www.sciencedirect.com/science/article/pii/S0020748918300877
  • Beresford B, Gibson F, Bayliss J, Mukherjee S. Preventing work‐related stress among staff working in children's cancer Principal Treatment Centres in the UK: a brief survey of staff support systems and practices. Eur. J. Cancer Care [Internet]. 2018 Mar;27(2):e12535. DOI: 10.1111/ecc.12535. Available from: https://onlinelibrary.wiley.com/doi/full/10.1111/ecc.12535
  • Day E, Jones L, Langner R, Stirling C, Hough R, Bluebond-Langner M. “We just follow the patients’ lead”: Healthcare professional perspectives on the involvement of teenagers with cancer in decision making. Pediatric blood & cancer. 2018 Mar;65(3):e26898. DOI: 10.1002/pbc.26898. Available from: https://onlinelibrary.wiley.com/doi/full/10.1002/pbc.26898
  • McCulloch, R., Sattar, M., Henderson, E. M., Lane, M. E., & Bluebond-Langner, M. (2018). Use of buccal morphine in the management of pain in children with life-limiting conditions: Results of a laboratory study. Palliat Med, 2018 Feb;32(2):554-558. DOI: 10.1177/0269216317717192 Available from: https://journals.sagepub.com/doi/full/10.1177/0269216317717192
  • Bluebond-Langner M, Langner R. Impact of cancer on the child, family and community. In: Wolfe, Jones, Kreicbergs, Jankovic, editors. Palliative Care in Pediatric Oncology. 1st edition. Boston: Springer; 2018. Chapter 2.


Published Abstracts / Poster Presentations

Bryan G, Vindrola C, Harding V, Ranasinghe N, Richardson A, Samarasinghe S, Taylor R, Gibson F. Development and Usability testing of HELP: An Information Intervention for Parents of Children with Newly Diagnosed Acute Lymphoblastic Leukaemia. Abstract eP284, Multinational Association of Supportive Care in Cancer (MASCC) and International Society of Oral Oncology (ISOO) Annual Meeting on Supportive Care in Cancer, Vienna, Austria 28-30 June 2018. Supportive Care in Cancer 2018, 26 (Suppl 2) S183


Print Media

Julie Bayliss interviewed by Catherine Sadler for an article “Why is 24/7 community children’s palliative care still not widely available? RCNi nursing children and youngpeople.co.uk 8th March 2018 Vol 30 No 2

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