2019

Published Articles and Book Chapters

• Harris N, Blackburn M, Noyes J, Aldridge J, Lapwood S, Dunbar H, Price J, Mitchell S,  Chambers L, Bluebond‐Langner M. Undertaking Doctoral Research with Children and Young People with Life‐limiting or Life‐threatening Conditions. JAN. 2019 Dec;75(12):3183-5. DOI: 10.1111/jan.1408. Available from: https://onlinelibrary.wiley.com/doi/full/10.1111/jan.14082

• Feudtner C, Rosenberg AR, Boss RD, Wiener L, Lyon ME, Hinds PS, Bluebond-Langner M, Wolfe J. Challenges and Priorities for Pediatric Palliative Care Research in the US and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop. Journal of pain and symptom management. 2019 Nov 1;58(5):909-17. DOI: 10.1016/j.jpainsymman.2019.08.01. Available from: https://www.sciencedirect.com/science/article/pii/S0885392419304579

• Anderson A, Burke K, Bendle L, Koh M, McCulloch R, Breen M.  Artificial nutrition and hydration for children and young people towards end of life: consensus guidelines across four specialist paediatric palliative care centres.  BMJ Supportive & Palliative Care Published Online First: 19 October 2019. DOI: 10.1136/bmjspcare-2019-001909. Available from: https://spcare.bmj.com/content/early/2019/10/18/bmjspcare-2019-001909.abstract

• Butler AE., Copnell, B., Hall, H. When a child dies in the PICU: Practice recommendations from a Qualitative Study of Bereaved Parents. Pediatric Critical Care Medicine, 2019 Sep 1;20(9):e447-5 DOI: 10.1097/PCC.0000000000002040. Available from:  https://journals.lww.com/pccmjournal/Fulltext/2019/09000/When_a_Child_Dies_in_the_PICU__Practice.25.aspx

• Wiener L, Bluebond-Langner M. Treating the Pediatric Cancer Patient: Insights that have stood the test of time. Journal of Pediatric Psychology. 2019 Aug;44 (7): 764–767. DOI: 10.1093/jpepsy/jsz022.  Available from:

• Greenfield K, Holley S, Schoth DE, Harrop E, Howard R, Bayliss J, Brook L, Jassal S, Johnson M, Wong I, Liossi C. Barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people at end-of-life: a mixed methods systematic review protocol. BMJ open. 2019 Jul 1;9(7):e030566. DOI: 10.1136/bmjopen-2019-030566. Available from: https://bmjopen.bmj.com/content/9/7/e030566?utm_content=consumer&utm_medium=cpc&utm_source=trendmd&utm_campaign=bmjo&utm_term=usage-042019

• Mullin J, Wolfe J, Bluebond-Langner M, Craig F. Experiences of Children with Trisomy 18 Referred to Pediatric Palliative Care Services on Two Continents. American Journal of Medical Genetics Part A. 2019 Jun;179A(6):903-907. DOI: 10.1002/ajmg.a.61149.  Available from: https://onlinelibrary.wiley.com/doi/full/10.1002/ajmg.a.61149

• Henderson EM, Rajapakse D, Kelly P, Boggs T, Bluebond-Langner M. Patient controlled analgesia for children with life-limiting conditions in the community: Results of a prospective observational study. J Pain Symptom Manage. 2019 May 5;57(5): e1-e4. DOI: 10.1016/j.jpainsymman.2019.02.015. Available from: https://www.jpsmjournal.com/article/S0885-3924(19)30093-4/abstract

• Stein A, Dalton L, Rapa E, Bluebond-Langner M,  Hanington L, Stein KF, Ziebland S, Rochat T, Harrop E, Kelly B, Bland R. Communication with children and adolescents about the diagnosis of their own life-threatening condition. The Lancet. 2019 Mar 16;393(10176):1150-6 DOI: 10.1016/S0140-6736(18)33201-X.  Available from: https://www.sciencedirect.com/science/article/pii/S014067361833201X

• Bryan G, Bluebond-Langner M, Kelly D, Kumpunen S, Oulton K, Gibson F. Studying Children’s Experiences in Interactions with Clinicians: Identifying Methods Fit for Purpose. Qual. Health Res. 2019 Feb;29(3):393-403. DOI:10.1177/1049732318801358.  Available from: https://journals.sagepub.com/doi/full/10.1177/1049732318801358

• Harding R, Chambers L, Bluebond-Langner M. Advancing the science of outcome measurement in paediatric palliative care. International Journal of Palliative Nursing. 2019 Feb 2;25(2): 72-79. DOI: 10.12968/ijpn.2019.22.72. Available from: https://www.magonlinelibrary.com/doi/full/10.12968/ijpn.2019.25.2.72

• Aidoo E, Rajapakse D. Overview of paediatric palliative care. British Journal of Anaesthesia Education. 2019 Feb 1;19(2):60-4. DOI: 10.1016/j.bjae.20111.001.  Available from: https://bjaed.org/article/S2058-5349(18)30135-5/abstract

• Sidgwick P, Fraser J, Fortune PM, McCulloch R. Parallel planning and the paediatric critical care patient. Archives of Disease in Childhood. 2019 Jan 31:archdischild-2018. DOI: 10.1136/archdischild-2018-315222.  Available from: https://adc.bmj.com/content/104/10/994.abstract

• Beecham E, Langner R, Hargrave D, Bluebond-Langner M. Children’s and Parents’ Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration. Qualitative health research. 2019 Jan;29(1):55-68. DOI: 10.1177/104973231878684. Available from: https://journals.sagepub.com/doi/full/10.1177/1049732318786484

• Butler  AE, Hall H, Copnell B. Bereaved parents’ experiences of the police in the Paediatric Intensive Care Unit. Australian Critical Care, 2019 Jan 1;32(1): 40-5. DOI: 10.1016/j.aucc.2018.02.00. Available from: https://www.sciencedirect.com/science/article/pii/S1036731417303934

Go back to Publications