Close
This section provides information about the working project groups and the structure that oversees the project's progress, activities, and any other relevant procedures.
- Project Management Team
The project management team (PMT) comprises the research leaders in the UK and Italy with a smaller number of nominated representatives from the Project Working Group. Integrated by:
Adela Cañete Nieto, Paediatric Oncology and Hematology Unit, Hospital UiP La Fe, Valencia, Spain.
Lisa Lyngsie Hjalgrim, Department of Pediatrics and Adolescent Medicine, University of Copenhagen, Rigshospitalet, Copenhagen, Denmark.
Zsuzsanna Jakab, Department of Pediatrics, Semmelweis University, Budapest, Hungary.
Bernward Zeller, Division of Pediatric and Adolescent Medicine, Oslo University Hospital, Oslo, Norway.
Charles Stiller, National Calcer Registration and Analysis Service, London, England.
Core Team (Prof Kathy Pritchard-Jones, Dr Gemma Gatta, Laura Botta, Fabio Didonè and Angela Lopez-Cortes)
- Project Working Group
The Project Working Group (PWG) includes representatives from each contributing cancer registry, oncology leads from collaborating clinical study groups and representatives from communication and dissemination partners. This group convenes quarterly throughout the Project.
Current participants
Australia: Australian Childhood Cancer Registry.
Austria: Austrian Cancer Registry.
Belgium: Belgian Cancer Registry.
Boston, MA (USA): Dana-Farber Cancer Institute.
Brazilian cancer registries:
RCBP de Aracaju
RCBP de Barretos
RCBP de Belém
RCBP de Belo Horizonte
RCBP de Campinas
RCBP de Curitiba
RCBP de Distrito Federal
RCBP de Fortaleza
RCBP de Jahu
RCBP de João Pessoa
RCBP de Mato Grosso
RCBP de Recife
Bulgaria: Bulgarian Cancer Registry
Canada: Ontario Children Cancer Registry _ POGO.
Croatia: Croatian Cancer Registry.
Czech Republic: Czech National Cancer Registry.
Denmark: Danish Childhood Cancer Registry and Department of Pediatric Oncology; Childhood Cancer Research Group, Danish Cancer Institute, Copenhagen, Denmark & Department of Clinical Medicine, Faculty of Health, Aarhus University and University Hospital, Aarhus, Denmark.
Estonia: Estonia National Institute for Health Development.
France: French National Registry of Childhood Cancer – Solid tumours; Hematopoietic Malignancies.
Germany: German Childhood Cancer Registry, Mainz.
Greece: Greek Nationwide Registry for Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST).
Hungary: Hungarian Child Cancer Registry.
Italy:
Basilicata Cancer Registry.
Bergamo Cancer Registry.
Campania Childhood Cancer Registry.
Childhood Cancer Registry of Piedmont.
Cremona & Mantova Cancer Registry.
Friuli Venezia Giulia Cancer Registry, CRO Aviano National Cancer Institute.
Integrated Cancer Registry CT-ME-EN.
Innovation, Research and Teaching Service, Teaching Hospital of the Paracelsus Medizinischen Privatuniversität, Bolzano-Bozen.
Liguria Cancer Registry, Ospedale Policlinico San Martino IRCCS.
Monza-Brianza Cancer Registry.
Palermo Province Cancer Registry.
Pavia Cancer Registry.
Puglia Cancer Registry.
Registro tumori ATS della Città metropolitana di Milano.
Registro Tumori ATS Insubria.
Registro tumori dell'Emilia-Romagna, Unità di Piacenza.
Registro tumori dell'Emilia-Romagna, Unità di Parma.
Registro tumori dell'Emilia-Romagna, Unità di Reggio Emilia.
Registro tumori dell'Emilia-Romagna, Unità di Modena.
Registro tumori dell'Emilia-Romagna, Unità di Ferrara.
Registro tumori dell'Emilia-Romagna, Unità della Romagna, IRCCS IRST Meldola.
Registro Tumori di Ragusa e Caltanissetta.
Registro Tumori Regione Marche.
Siracusa Province Cancer Registry.
Toscana Cancer Registry.
Trapani Cancer Registry.
Trento Cancer Registry (Trento CR), Servizio Epidemiologia Clinica e Valutativa, APSS Trento.
Veneto Cancer Registry, Regional Epidemiological Service, Azienda Zero, Padova, Italy.
Ireland: Ireland Cancer Registry.
Japan: National Cancer Center; Osaka Cancer Registry.
Malta: Malta National Cancer Registry, Health Information and Research.
Norway: Norwegian Cancer Registry.
Poland: Polish Childhood Cancer Clinical Database provided by the Polish Society of Paediatric Oncology and Haematology (PSPOH) and the Institute of Mother and Child.
Portugal: Portuguese Pediatric Cancer Registry.
Romania: Romanian Child Cancer Registry.
Slovenia: Cancer Registry of Republic of Slovenia.
Spain:
Basque Country, Euskadi-CIBERESP Cancer Registry.
Childhood and Adolescents Cancer Registry – CISCV.
Girona Cancer Registry, CIBERESP, ICO, IDIBGI.
Granada Cancer Registry, EASP, CIBERESP, ibs.GRANADA, UGR.
Madrid Childhood Cancer Registry.
Murcia Cancer Registry, CIBERESP, IMIB-Arrixaca.
Navarra Cancer Registry, ISPLN, CIBERESP, IdiSNA.
Spanish Registry of Childhood Tumours (RETI SEHOP), University of Valencia, Faculty of Medicine.
Tarragona Cancer Registry, HUSJR, IISPV.
Sweden: Swedish Childhood Cancer Registry – SCCR, Karolinska Institute, Stockholm, Sweden.
Switzerland: Childhood Cancer Registry, Institute of Social and Preventive Medicine, University of Bern.
The Netherlands: The Netherlands Cancer Registry.
United Kingdom:
England: National Disease Registration Service, Transformation Directorate, NHS England.
Northern Ireland Cancer Registry.
Scotland: Scottish Cancer Registry.
Welsh Cancer Intelligence and Surveillance Unit, Public Health Wales.
- Independent Advisory Board
An Independent Advisory Board (IAB) that includes a cancer registry director not directly involved in the day-to-day project, parent and survivor representatives, clinical executive-level members of a national paediatric oncology society, a clinical trial study group and a medical director-level clinician involved in the organisation of childhood cancer services. Integrated by:
Anna Gavin, Northern Ireland Cancer Registry School of Medicine, Centre for Public Health, Queen's University Belfast, Belfast, Northern Ireland.
Piotr Czauderna, Department of Surgery and Pediatric Urology, Medical University of Gdansk, Poland.
François Doz, SIREDO Center (Pediatric, Adolescent and Young Adults Oncology), Institut Curie, University of Paris, Paris, France.
Riccardo Haupt, Epidemiology and Biostatistics Unit and DOPO Clinic, IRCCS Istituto Giannina Gaslini, Genova, Italy.
Wendy Tarplee-Morris, The Little Princess Trust, Hereford, England.
Christian Müller, Gert und Susanna Mayer Stiftung, Wuppertal, Nordrhein-Westfalen, Germany.
Martin McCabe, Division of Cancer Sciences, University of Manchester, Manchester, England.
Manola Bettio, European Commission, Joint Research Centre, Ispra, Varese, Italy.
Core and Project Management Team.
- Patient and Public Involvement and Engagement in Research (PPIE)
There is also representation by Patient and Public Involvement and Engagement in Research (PPIE) structures.
- Data Flow Diagram
To overview a graphic representation of the data flow between cancer registries and the data controller, please follow this link:
