Close
The MRC Centre for Neuromuscular Diseases has held two patient organisation representatives meetings at Queen Square.
Please take a look at the 2008 and 2010 meeting programmes for more information.
Please email christine.oldfied@ucl.ac.uk to receive information on future events.
The following organisations can provide more specific disease related support:
- Action Duchenne
- Association for Glycogen Storage Diseases (UK)
- Becker United (Becker Muscular Dystrophy)
- Charcot Marie Tooth Disease (CMT)
- Duchenne Family Support Group
- Facioscapulohumeral Muscular Dystrophy (FSH-MD) support group
- Guillain-Barre Syndrome (GBS) Support Group
- The Jennifer Trust for Spinal Muscular Atrophy
- The Lily Foundation (Mitochondrial Disease)
- Muscular Dystrophy UK
- Myasthenia Gravis Association
- Myositis Support Group
- Myotonic Dystrophy Support Group
- Myotubular Trust
- Nemaline Myopathy Support Group