Patient Organisation Partners

The MRC Centre for Neuromuscular Diseases has held two patient organisation representatives meetings at Queen Square.

Please take a look at the 2008 and 2010 meeting programmes for more information.

Please email christine.oldfied@ucl.ac.uk to receive information on future events.

The following organisations can provide more specific disease related support:

• Action Duchenne
• Association for Glycogen Storage Diseases (UK)
• Becker United (Becker Muscular Dystrophy)
• Charcot Marie Tooth Disease (CMT)
• Duchenne Family Support Group
• Facioscapulohumeral Muscular Dystrophy (FSH-MD) support group
• Guillain-Barre Syndrome (GBS) Support Group
• The Jennifer Trust for Spinal Muscular Atrophy
• The Lily Foundation (Mitochondrial Disease)
• Muscular Dystrophy UK
• Myasthenia Gravis Association
• Myositis Support Group
• Myotonic Dystrophy Support Group
• Myotubular Trust
• Nemaline Myopathy Support Group