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The following organisations can provide specific disease related support:
- Action Duchenne
- Association for Glycogen Storage Diseases (UK)
- Becker United (Becker Muscular Dystrophy)
- Charcot Marie Tooth Disease (CMT) UK
- Duchenne Family Support Group
- Duchenne UK
- Facioscapulohumeral Muscular Dystrophy (FSH-MD) support group
- The Jennifer Trust for Spinal Muscular Atrophy
- The Lily Foundation (Mitochondrial Disease)
- Muscular Dystrophy UK
- Myaware
- Myositis Support Group
- Myotonic Dystrophy Support Group
- Myotubular Trust
- Nemaline Myopathy Support Group
- SMA UK
- UK ATTR Amyloidosis Patients' Association (UKATPA)