UCL Cancer Institute


WP5 - Dissemination and Patient and Public Involvement (PPI) in the EEC

The aim of WP5 is to extend the work of the Sarcoma Patients Euronet (SPAEN) patient research group to the EURO EWING Consortium to:

  • Identify a group of Ewing sarcoma patients/ carers/ family members.
  • Provide training in knowledge and skills which can be applied to supporting the project.
  • Incorporate PPI activity into all future work of the EEC, including dissemination, oversight of activities and strategic priority-setting for next generation research.
  • Ensure rapid, wide and open communication of all aspects of the project.

The following deliverables will be completed for WP5:

Deliverable numberDescription*Month dueDocument link
D5.1Register of PPI partners11D5.1 (web version) (pdf)
D5.2Priorities for PPI in EEC18D5.2 (pdf)
D5.3Evaluation of PPI in EEC48D5.3 (pdf)
D5.4Dissemination and Communication Plan11Confidential
D5.5Website activation6D5.5 (pdf)
D5.6Publication policy11Confidential

Some of the documents can be viewed by the public - click on the link in the Document link column to download the pdf.

*Month 1 is October 2013