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The aim of WP5 is to extend the work of the Sarcoma Patients Euronet (SPAEN) patient research group to the EURO EWING Consortium to:
- Identify a group of Ewing sarcoma patients/ carers/ family members.
- Provide training in knowledge and skills which can be applied to supporting the project.
- Incorporate PPI activity into all future work of the EEC, including dissemination, oversight of activities and strategic priority-setting for next generation research.
- Ensure rapid, wide and open communication of all aspects of the project.
The following deliverables will be completed for WP5:
| Deliverable number | Description | *Month due | Document link |
|---|---|---|---|
| D5.1 | Register of PPI partners | 11 | D5.1 (web version) (pdf) |
| D5.2 | Priorities for PPI in EEC | 18 | D5.2 (pdf) |
| D5.3 | Evaluation of PPI in EEC | 48 | D5.3 (pdf) |
| D5.4 | Dissemination and Communication Plan | 11 | Confidential |
| D5.5 | Website activation | 6 | D5.5 (pdf) |
| D5.6 | Publication policy | 11 | Confidential |
Some of the documents can be viewed by the public - click on the link in the Document link column to download the pdf.
*Month 1 is October 2013