Information and Support

Information can be found on the websites listed below. Some of these organisations offer support for those affected by Ewing sarcoma.

• Associazione Peter Pan Onlus (Italy)
• Bone Cancer Research Trust
• Cancer Research UK
• European Network for Cancer Research in Children and Adolescents (ENCCA) (website no longer active)
• European Patients' Academy
• euroSARC
• Ewing's Sarcoma Research Trust
• Guy Francis Bone Cancer Research Fund
• Sarcoma UK
• Info Sarcomes (France)
• INVOLVE
• Joining up the dots
• Macmillan
• NHS Choices
• Orphanet
• Passnetwork (Italy)
• Patient and public involvement through the National Institute for Health Research (UK)
• Sarcoma Patients EuroNet (SPAEN)
• Sarkomer (Norway)
• Teenage Cancer Trust
• Unite2Cure

Clinical trials open to patients with Ewing sarcoma in Europe

The EEC has produced a list of some of the clinical trials open to Ewing sarcoma patients in Europe. (pdf) Last updated 16 May 2017.

Bone Cancer Research Trust also has information on clinical trials.