Autumn 2019 EEC meeting
Date: Tuesday 24th September 2019
Location: Friends House, Euston Road, London
Date: Thursday 23th - Friday 24th May 2019
Location: SIOP Europe in Prague as part of the European Bone Sarcoma Networking meeting.
Prague Congress Centre
5 kvetna 1640/65, Nusle
140 00 Prague 4
Tel.: +420 261 171 111
Date: 11th - 12th December 2018
Location: George Fox room, Friends House, 173-177 Euston Rd, London NW1 2BJ
Tuesday 11 December: EE20XX planning meeting and EEC biology session
Wednesday 12 December: EEC meeting including presentations from invited speaker Professor Heinrich Kovar and young researchers.
Date: Wednesday 13 June 2018
Location: William Penn room, Friends House, 173-177 Euston Rd, London NW1 2BJ
The meeting focused on European Ewing sarcoma clinical trials.
09:30 Registration, tea, coffee and Danish pastries
10:00 Welcome and introductions
10:05 Presentations: Collaborative opportunities for trials in newly diagnosed Ewing sarcoma
11:55 Coffee break
12:15 Round table discussion: Collaborative opportunities for trials in newly diagnosed Ewing sarcoma
12:45 EEC Council
14:35 Evaluating new agents: rEECur
15:35 Evaluating new agents: other studies
16:00 Close of meeting, tea and coffee available
Ewing Spring Meeting 2018
Date: Monday 12th - Tuesday 13th March 2018
Location: University of Essen Campus, Hohlweg 8, 45147 Essen, Room 43.0.026 (ground floor)
Musculoskeletal Pathology Course 2018
Date: 16th -20th April 2018
The Course consisted of a 5-day update on management of bone and soft tissue tumors, with particular emphasis on clinico-pathologic and radiographic correlations including practical studies under microscope. It was addressed to orthopaedic surgeons, oncologists, pathologists, radiologists and basic researchers to improve their knowledge and competence in these pathologies by working in multidisciplinary teams. The format included interactive sessions for questions, case presentations and an early morning interactive session of multiple choice questions reviewing the topics previously discussed. The last day, participants were grouped in multidisciplinary teams to discuss a clinical case. The best teams were awarded a prize.
When Chris Copland met Jeff Toretsky
In October 2017, Chris Copland, EEC patient advocate flew to Washington DC to speak at the SIOP conference about the campaign on age of entry to trials. He made a detour to meet and interview Jeff Toretsky, Georgetown University to find out more about his research into a drug to target Ewing sarcoma cells.
Date: 17th - 18th January 2018
Location: Friends House, Euston Road, London.
Paper published in JCP by Ornella Gonzato, EEC patient expert
Ornella Gonzato, an EEC patient expert based in Italy has written a paper on the patient perspective on access to innovative drugs and how access should not just be limited to patients with the more common cancers. She discusses the issues, interdependencies and risk-sharing. She summarises that the ‘core driver’ from the patient point of view is that: “When you are faced with a rare cancer, you really can’t wait.” The paper is called ‘The new risk-sharing paradigm in rare cancers: Patient perspective’ and was published in the Journal of Cancer Policy.
Date: 22nd June 2017
Location: Hallam Conference Centre – 44 Hallam Street, London W1W 6JJ
Also held at this venue was the European Bone Sarcoma Network Meeting on Wednesday 21 June and the 2nd International Consensus Meeting on Local Therapy for Ewing Sarcoma (Thursday 22 to Friday 23 June 2017).
Bone tumour course
Date: 9th - 11th October 2017
Location: Leiden, The Netherlands
A multidisciplinary approach to the diagnosis of bone tumours
For more information email firstname.lastname@example.org
Young researcher presentations at the EEC meeting, funded by the Peter Pan charity
Date: January 2017
Six young researchers from Europe, working on Ewing sarcoma, were awarded travel bursaries to attend the EEC meeting in London in January 2017. Funding was donated by the Peter Pan charity and was granted for two spoken presentations and four posters. The EEC were very impressed with the standard and glad that it had been a positive experience for the young researchers.
Date: 18-19 January
Location: Friends House near Euston, London
The agenda included workshops on 'Developing a strategy for future European cooperation in ES research' and 'Delivering new agent studies in EEC' as well as an opportunity to hear updates on the progress of the project and new study proposals.
13 July 2016
Young reseachers from Europe presented at the EEC meeting in July in Brussels. They were funded to attend and present their results through a generous donation from the Peter Pan charity in Italy.
22 April 2016
Chris Copland, a patient expert from the UK presented a poster on the role of patient experts in the EEC at the Childhood Cancer International (CCI) conference in Belgrade in April 2016.
Date: Wednesday 13 July
Location: EORTC, Avenue Emmanuel Mounier, 83/11, Brussels 1200, Belgium
7th Joint IOR/MSKCC/HSS XXIX Course on Musculoskeletal Pathology
Date: 11th - 15th April 2016
Location: Centro di Ricerca Codivilla-Putti, Istituto Ortopedico Rizzoli, Via di Barbiano 1/10, Bologna – Italy
EEC are supporting Unite2Cure in their campaign to improve access to new drugs for trials in young people
The EURO EWING Consortium supports the Unite2Cure campaign to change European Paediatric Medicine Regulation as there is a need for better access to allow testing of new treatments for rare cancers like Ewing sarcoma, that mainly affect young people. Survival rates have not improved for 25 years and so new drugs and innovative trials are needed to make sure that more people are cured from this rare cancer.
To sign the petition go to http://unite2cure.org/sign-the-petition/
Date: Wednesday 2nd - Thursday 3rd December 2015
Location: Friends House, 173-177 Euston Road, London, NW1 2BJ
25 September 2015
Patient experts Chris Copland, Ornella Gonzato and Lindsey Bennister gave their perspective on 'how to construct and perform informative bone sarcoma trials if and when a new drug emerges' at the 3rd European Bone Sarcoma Networking Meeting in Vienna, Austria.
Summary of the meeting
24 August 2015
Our search for patient experts to help with EEC research publicised in the Sarcoma UK Connect newsletter on p14.
27 July 2015
A Q&A article written by Chris Copland (patient/carer expert for the EEC) posted on the Childhood Cancer International (CCI) website.
24 July 2015
Congratulations to the team in France who have now opened Euro Ewing 2012 and recruited their first patient to the trial.
24 - 25 September 2015
EEC Partners are holding a joint workshop with members of ENCCA WP7, EuroSarc and PROVABES at the 3rd European Bone Sarcoma Networking Meeting in Vienna, Austria.
10 June 2015
EEC Partners meet in London to discuss progress with the two trials - Euro Ewing 2012 and rEECur.
4 March 2015 - First patients recruited to Euro Ewing 2012 trial in Spain
Congratulations to the Spanish investigators and trial team who opened Euro Ewing 2012 at the first site in Spain yesterday and recruited the first two patients today.
23 February 2015 - The Sarcoma UK 2015 grant call is now OPEN
The research allocation for the 2015 grant round is £350k.
DEADLINE FOR APPLICATIONS: 5pm, Thursday 26 March 2015
Large grants are capped at £120,000, small grants in the region of £25,000, up to £50,000
Submissions will be accepted from Principal Investigators and Clinicians working in higher educational institutions or specialist treatment centres in the UK.
More information: http://www.sarcoma.org.uk/researcherinfo
29 January 2015 - First patient recruited to the rEECur trial
Congratulations and thanks for your hard work to all those involved in setting up the study.