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The research will involve video or audio recording all formal conversations between health care professionals and participating families. Outline information about the condition of the baby and their family are collected. Identifying information is kept separately to the recordings so they cannot be linked outside the study. Conversation analysis will be used to explore how different conversational practices work and unfold, in order to understand how doctors and parents make difficult decisions together. The conversations are stored confidentially and no identifying information will be made available in any potential dissemination. The videos can be easily anonymized in an effective way so that if they are presented in academic conferences, journals and training, they appear in the form of animated line drawings. Identifying details are removed from the audio and the pitch is distorted, minimising the possibility of a person being identified by voice quality alone.
The aim is to provide examples of good practice so that this can be used to support nationwide training.
Access to recordings
Parents will be given a copy of the anonymised audio from their video recordings, as there is evidence that parents find these recordings helpful for information recall and relate to higher levels of satisfaction with their baby's care (Koh et al. 2007).