UCL Psychology and Language Sciences


Research on Dementia, Stigma and Disclosure

Current Projects

The 'Who to tell, how and when project'

Jem Bhatt, funded by the Alzheimer's Society and ESRC, is conducting her PhD into positive ways to support people who have recently been given a diagnosis of dementia in considering whether to share this diagnosis and/or difficulties associated with dementia, and if so, what to share, and when and how to do so. This study is informed by Honest Open Proud and the broader literature on decision making and decision aids, and is supervised by Georgina Charlesworth and Katrina Scior. 

Digital interventions to support people with dementia in disclosing their diagnosis to their social network

As part of her PhD, Gianna Kohl is investigating how people living with dementia and their family use technology to tell others about the dementia diagnosis, and how an online resource or app could be developed to support decision-making around "who to tell, how and when". Her study is part of DISTINCT, a unique academic and non-academic partnership across Europe, and funded by the Marie Skłodowska-Curie Innovative Training Networks (MSC-ITN) under the European Commission's Horizon 2020 programme. She is supervised by Georgina Charlesworth and Katrina Scior.

How do partner of people with dementia tell family and friends about the diagnosis?

It is estimated that there are currently 540,000 people caring for a family member with dementia in England and that one in three people will care for a person with dementia during their lifetime. One of many dilemmas is who to tell, at what point, and how much information to disclose. As part of his Doctorate in Clinical Psychology, Doug Hobson is carrying out reseaech to understand the factors that influence decisions about whether to disclose or conceal a partner's dementia diagnosis and to better understand the consequences of this. The study is supervised by Georgina Charlesworth.