NCL Disease


NCL Resource - A gateway for Batten disease

Welcome to the new NCL resource webpages!

This site serves as a global gateway for any with an interest in or affected by Batten disease, also known as the neuronal ceroid lipofuscinoses (NCL), or who wish to find out more.

NCL 2020 announcement

Save the date

NCL2020 will no longer be held in October 2020NCL2021 is planned for October 2021, at the Washington University in St Louis.

picture of datasheet

NCL mutation and patient databases

Summary of mutations and patients by gene

Picture of medics


Diagnosis, diagnostic services, nomenclature and treatments

Picture of family group


Batten disease, treatments and support groups

Group of NCL researchers at a conference


Resources for research

Cartoon of a research meeting

NCL meetings

International meetings and large collaborative research projects

One user reported in Nov 2009 "After scouring the internet for the past few weeks and sifting through scientific journals, personal testimonies, and clinical studies, I continue to return to your NCL website.   At least for me, it is by far the most accessible, user-friendly, and informative site for the layperson that I have found and subsequently used.   Thank you for providing this resource--to the global community, indeed",  and another more briefly in 2012 "I thought your Batten webpage was fantastic".

Website maintained by Emily Gardner and Sara Mole

University College London

Last updated 20/04/2020