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National Prion Clinic

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Clinic staff

Between them, the National Prion Clinic staff have many decades of experience in Prion Diseases, making this a world renowned centre of excellence and expertise. The staff are listed below, with a short biographical statement by way of introduction.

Clinical Fellows

Danielle Sequeira
Dr Danielle Sequeira
Danielle completed a BSc in Biomedical Sciences in 2011, following which she studied medicine at Durham and Newcastle University, graduating in 2016. She undertook her foundation and core medical training in North West and Central London and joined the team at the National Prion Clinic as a clinical research fellow in August 2020. 
Tom
Dr Tom Coysh
Tom studied medicine at Cambridge University, with an intercalated degree in Physiology, Development & Neuroscience and since then has undertaken most of his training in London. He has trained in neurology at the National Hospital for Neurology & Neurosurgery, St Mary’s Hospital and Charing Cross Hospital and joined the National Prion Clinic in October 2020.

Clinical Research Fellows

Akin Nihat

Dr Akin Nihat

Akin studied medicine at Imperial College London, where he also obtained an intercalated BSc in Neuroscience. He completed his core medical training in London, and joined the National Prion Clinic in August 2015 as a clinical research fellow.
Mok
Dr Tze How Mok
Mok completed undergraduate medicine at University College Dublin and Penang Medical College in 2006. He trained in clinical neurology in Cork, Dublin and the Royal Free London, prior to taking up his current position as a clinical research fellow in August 2014.

Clinical Research Nurse / Prion Disease Clinical Nurse Specialists

Kirsty

Kirsty McNiven

Kirsty joined the National Prion Clinic in June 2014 as a Clinical Research Nurse / Clinical Nurse Specialist.  She completed her nursing training at the Robert Gordon University; Aberdeen in 2010 then went on to work in Neurosciences at King’s College Hospital for three years.  Kirsty was the lead author on a paper on artificial feeding in patients in the advanced stages of Prion Disease, published in Brain Communications in 2019.  As a Clinical Research Nurse, she has been contributing to Covid-19 studies e.g. the Oxford Vaccine Trial, and wishes to go on to develop her career in research.
Selam

Selam Tesfamichael

Selam joined the National Prion Clinic in November 2012 as a clinical nurse specialist. She completed her nursing studies at London South Bank University then went on to specialise in neurosurgery/neurology at Kings College London. Selam worked at the Royal Free Hospital neurosurgical department for six years and at The National Neurosurgery and Neurology hospital for two years.  Selam co-authored a Department of Health and Social Care guideline for social workers managing CJD cases, published 2018.
Veronica

Veronica O'Donnell

Veronica completed her training at the University of Newcastle with a BSc in Health Education. She has worked mainly in renal, renal oncology, palliative care and neurology.  Veronica joined the National Prion clinic in May 2010 as a Clinical Nurse Specialist, where she is currently undertaking courses in Mentorship and genetic counselling.

Cohort Manager

Sarah
Sarah Mazdon
Sarah joined the National Prion Clinic as the Cohort Manager in March 2019, having spent 20 years in various NHS administration roles, most recently at University College London  Hospitals NHS Trust

Consultant Clinical Lead, Professor of Neurology 

Simon
Prof. Simon Mead
After medical training at Cambridge and Oxford Universities and a PhD in the genetics of prion diseases at Imperial College London, Simon Mead is now a consultant neurologist and Clinical Lead of the UK National Prion Clinic based at the National Hospital for Neurology and Neurosurgery. Also working at the UK Medical Research Council’s Prion Unit, his research interests include clinical trial studies enrolling CJD or prion disease patients, the discovery of genetic factors that cause or influence prion disease and the development of treatments for prion disease based on antibodies.

Consultant Neurologist

Peter
Dr Peter Rudge
Peter Rudge read medicine initially at the Royal Veterinary College, London and then at St Bartholomew's Medical College. After completing his general medical training at Bart's and The Royal Post Graduate Medical School, Hammersmith he trained in neuroloy at the National Hospital, Queen Square and was appointed to the staff in 1974, jointly with Northwick Park Hospital. He has also held honorary appointments at the Royal Marsden, St Mary's and St Thomas' Hospitals in London and Kingston Public Hospital in Jamaica. For the past 3 years he has held an appointment in the National Prion Clinic as a clinical neurologist helping to review referrals to that clinic and recruitment to the National Cohort.

He has published over 180 peer reviewed papers principally on neuro-otology, multiple sclerosis and most recently prion diseases.

Director of Prion Unit, Professor of Neurology 

John Collinge
Prof. John Collinge

Professor Collinge graduated in Medicine in 1984 from Bristol University and trained in clinical neurology at St. Mary's Hospital and the National Hospital for Neurology and Neurosurgery in London. He is Professor of Neurology and Director of the Medical Research Council (MRC) Prion Unit and Institute of Prion Diseases at University College London (UCL) and Director of the UK National Prion Clinic at the National Hospital for Neurology and Neurosurgery. His research is working towards a fundamental understanding of how prions cause disease and the development of effective treatments. He is a founder fellow of the UK Academy of Medical Sciences, was elected a Fellow of the Royal Society in 2005 and appointed an inaugural Senior Fellow of the Faculty of the National Institute for Health Research in 2008. He is also a visiting Professor of Neurology at Harvard Medical School. He was awarded a CBE by HM the Queen in 2004 for services to medical research.

Lead Nurse

Phil Parker
Philip Parker
Our Lead Nurse, Phil joined the team in October 2018.  He trained as a nurse at King’s College London , and went on to study Dementia – Advanced Practice as a Post-Graduate at St George’s University of London.  Phil worked at Barnes Hospital as a Dementia Inreach Nurse, then as a Memory Nurse at the Richmond Memory Service.  He then became a Community Dementia Nurse under the Royal Marsden NHS Trust, and latterly, as a Dementia Clinical Nurse Lead, he founded The Dementia and End of Life Care team at Central London Community Healthcare NHS Trust

Neuropsychologist

Edgar
Dr Edgar Chan
Edgar Chan is a Consultant Clinical Neuropsychologist. He completed his undergraduate degree in Psychology at the University of Melbourne and his post-graduate professional training in Clinical Psychology and Clinical Neuropsychology at the University of Queensland.  He obtained a PhD in Cognitive Neuroscience at the Queensland Brain Institute and has been working in the Department of Neuropsychology at the National Hospital for Neurology and Neurosurgery Queen Square since 2013. He is also an Honorary Senior Research Associate with the Stroke Research Group at the Institute of Neurology, UCL. 

Patient administration

Regina
Regina Appenteng
Regina joined the NPC as the patient pathway co-ordinator/administrator in November 2016, having spent 10 years working for the Whittington Hospital. Her role involves coordinating data from General Practitioners and Healthcare professionals for the clinicians in the NPC.