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The organisations below provide information and support for patients, relatives and carers as well as information for professionals who may care for patients with myasthenia or related conditions:
Myaware
www.myaware.org
Myaware (Myasthenia
Gravis Association), The College Business Centre, Uttoxeter New Road, Derby
DE22 3WZ
Tel: 01332 290219
Email: info@myaware.org
Muscular Dystrophy UK
www.musculardystrophyuk.org
Muscular Dystrophy UK
61A Great Suffolk Street
London
SE1 0BU
Tel: 020 7803 4800 or
helpline: 0800 652 6352
Email: info@musculardystrophyuk.org
Both organisations have
social media links for support and contact with other people with myasthenia
and related conditions.
Papers
Jennifer Spillane, David J Beeson, Dimitri M Kullmann. Myasthenia and related disorders of the neuromuscular junction. J Neurol Neurosurg Psychiatry 2010;81:850-857. PMID: 20547629