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Myositis Support Group
www.myositis.org.uk
Tel: 023 8044 9708 (10-3 Mon-Fri)
Patient group for those with either inclusion body myositis or inflammatory myopathies.
Muscular Dystrophy Campaign
www.muscular-dystrophy.org
Tel: 0800 652 6352
More patient information is available for IBM.
Publications
Greenberg SA. Inclusion body myositis. Curr Opin Rheumatol. 2011 Nov;23(6):574-8. PubMed PMID: 21885973
Machado P, Miller A, Holton J, Hanna M. Sporadic inclusion
body myositis: an unsolved mystery. Acta Reumatol Port. 2009
Apr-Jun;34(2A):161-82. Review. PubMed PMID: 19474772
Ahmed M*, Machado PM*, Miller A*, Spicer C, Herbelin L, He J, Noel J, Wang Y, McVey AL, Pasnoor M, Gallagher P, Statland J, Lu C-H, Kalmar B, Brady S, Sethi H, Samandouras G, Parton M, Holton JL, Weston A, Collinson L, Taylor JP, Schiavo G, Hanna MG, Barohn RJ, Dimachkie MM, Greensmith L (*joint first authors). Targeting protein homeostasis as a novel therapeutic approach in Sporadic Inclusion Body Myositis. Science Translational Medicine 2016 (manuscript accepted for publication).
Morrow JM, Sinclair CD, Fischmann A, Machado PM, Reilly MM, Yousry TA, Thornton JS, Hanna MG. MRI biomarker assessment of neuromuscular disease progression: a prospective observational cohort study. Lancet Neurol. 2016 Jan;15(1):65-77. doi: 10.1016/S1474-4422(15)00242-2. Epub 2015 Nov 6. PubMed PMID: 26549782; PubMed Central PMCID: PMC4672173.
Gang Q, Bettencourt C, Houlden H, Hanna MG, Machado PM. Genetic advances in sporadic inclusion body myositis. Curr Opin Rheumatol. 2015 Nov;27(6):586-94. doi: 10.1097/BOR.0000000000000213. PubMed PMID: 26335925.
Rothwell S, Cooper RG, Lundberg IE, Miller FW, Gregersen PK, Bowes J, Vencovsky J, Danko K, Limaye V, Selva-O'Callaghan A, Hanna MG, Machado PM, Pachman LM, Reed AM, Rider LG, Cobb J, Platt H, Molberg Ø, Benveniste O, Mathiesen P, Radstake T, Doria A, De Bleecker J, De Paepe B, Maurer B, Ollier WE, Padyukov L, O'Hanlon TP, Lee A, Amos CI, Gieger C, Meitinger T, Winkelmann J, Wedderburn LR, Chinoy H, Lamb JA; Myositis Genetics Consortium. Dense genotyping of immune-related loci in idiopathic inflammatory myopathies confirms HLA alleles as the strongest genetic risk factor and suggests different genetic background for major clinical subgroups. Ann Rheum Dis. 2015 Sep 11. pii: annrheumdis-2015-208119. doi: 10.1136/annrheumdis-2015-208119. [Epub ahead of print] PubMed PMID: 26362759.
Gang Q, Bettencourt C, Machado PM, Fox Z, Brady S, Healy E, Parton M, Holton JL, Hilton-Jones D, Shieh PB, Zanoteli E, De Paepe B, De Bleecker J, Shaibani A, Ripolone M, Violano R, Moggio M, Barohn RJ, Dimachkie MM, Mora M, Mantegazza R, Zanotti S, Hanna MG, Houlden H; Muscle Study Group and the International IBM Genetics Consortium. The effects of an intronic polymorphism in TOMM40 and APOE genotypes in sporadic inclusion body myositis. Neurobiol Aging. 2015 Apr;36(4):1766.e1-3. doi: 10.1016/j.neurobiolaging.2014.12.039. Epub 2015 Jan 14. PubMed PMID: 25670332; PubMed Central PMCID: PMC4378665.
Herbert MK, Stammen-Vogelzangs J, Verbeek MM, Rietveld A, Lundberg IE, Chinoy H, Lamb JA, Cooper RG, Roberts M, Badrising UA, De Bleecker JL, Machado PM, Hanna MG, Plestilova L, Vencovsky J, van Engelen BG, Pruijn GJ. Disease specificity of autoantibodies to cytosolic 5'-nucleotidase 1A in sporadic inclusion body myositis versus known autoimmune diseases. Ann Rheum Dis. 2015 Feb 24. pii: annrheumdis-2014-206691. doi: 10.1136/annrheumdis-2014-206691. [Epub ahead of print] PubMed PMID: 25714931; PubMed Central PMCID: PMC4699257.
Machado PM, Ahmed M, Brady S, Gang Q, Healy E, Morrow JM, Wallace AC, Dewar L, Ramdharry G, Parton M, Holton JL, Houlden H, Greensmith L, Hanna MG. Ongoing developments in sporadic inclusion body myositis. Curr Rheumatol Rep. 2014 Dec;16(12):477. doi: 10.1007/s11926-014-0477-9. Review. PubMed PMID: 25399751; PubMed Central PMCID: PMC4233319.
Machado PM, Dimachkie MM, Barohn RJ. Sporadic inclusion body myositis: new insights and potential therapy. Curr Opin Neurol. 2014 Oct;27(5):591-8. doi: 10.1097/WCO.0000000000000129. PubMed PMID: 25159931; PubMed Central PMCID: PMC4248565.
Gang Q, Bettencourt C, Machado P, Hanna MG, Houlden H. Sporadic inclusion body myositis: the genetic contributions to the pathogenesis. Orphanet J Rare Dis. 2014 Jun 19;9:88. doi: 10.1186/1750-1172-9-88. Review. PubMed PMID: 24948216; PubMed Central PMCID: PMC4071018.
Hiscock A, Dewar L, Parton M, Machado P, Hanna M, Ramdharry G. Frequency and circumstances of falls in people with inclusion body myositis: a questionnaire survey to explore falls management and physiotherapy provision. Physiotherapy. 2014 Mar;100(1):61-5. doi: 10.1016/j.physio.2013.06.002. Epub 2013 Aug 15. PubMed PMID: 23954023.
Machado P, Brady S, Hanna MG. Update in inclusion body myositis. Curr Opin Rheumatol. 2013 Nov;25(6):763-71. doi: 10.1097/01.bor.0000434671.77891.9a. Review. PubMed PMID: 24067381; PubMed Central PMCID: PMC4196838.
Cortese A, Machado P, Morrow J, Dewar L, Hiscock A, Miller A, Brady S, Hilton-Jones D, Parton M, Hanna MG. Longitudinal observational study of sporadic inclusion body myositis: implications for clinical trials. Neuromuscul Disord. 2013 May;23(5):404-12. doi: 10.1016/j.nmd.2013.02.010. Epub 2013 Mar 11. PubMed PMID: 23489664.
Machado P, Miller A, Holton J, Hanna M. Sporadic inclusion body myositis: an unsolved mystery. Acta Reumatol Port. 2009 Apr-Jun;34(2A):161-82. Review. PubMed PMID: 19474772.