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Queen Square Centre for Neuromuscular Diseases

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Diagnosis and treatment

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The service

The service provides an outpatient clinic (MJP02) every fortnight.

This clinic provides access to an large, experienced team. They include specialist nurses, physiotherapists, occupational therapists, speech and language therapists and dieticians.

Diagnosis

Muscle strength test (pull)

Inflammatory muscle diseases can be a difficult condition to recognise, and secure confident diagnosis relies on both clinical assessment and analysis of a muscle biopsy.

Treatment

To date, no treatment has been shown to improve the outcome of inflammatory muscle diseases.

The condition is managed by reducing its effects on the patient.

Dr. Pedro Machado runs a monthly Inclusion Body Myositis/Inflammatory Myopathies clinic (MGHPM).

Drug development

We are completing a clinical trial of a novel experimental compound called 'Arimoclomol'. Recruitment  to the trial has ended. 

If this trial data shows promise and Arimoclomol is safe and well-tolerated, we aim to perform a large study.