General patient support websites

The two local charities for Queen Square are the Brain Research Trust (supporting the ION) and the National Brain Appeal (supporting the NHNN)

Association of Medical Research Charities - National membership organisation of leading medical and health research charities.

Brain Research Trust - Brain Research Trust is the umbrella charity for research into conditions of the brain and nervous system, promoting and supporting research into the causes, treatment, prevention and cure of neurological diseases.  We fund basic and clinical research at University College London’s world-renowned Institute of Neurology.

Contact a Family - Contact a Family is the only UK charity providing support and advice to parents whatever the medical condition of their child.

CORE - for those wishing to read around academic research articles, CORE is a tool to facilitate free public access to content stored in Open Access repositories across the world.

DIPEx - healthtalkonline & youthhealthtalk - DIPEx has created a unique database of personal and patient experiences through in-depth qualitative research into over 40 different illnesses and health conditions.

DVLA Guidelines for Medical Staff - This publication summarises the national medical guidelines of fitness to drive and is available to doctors and health care professionals. See also DVLA Information for Drivers

eMC - The electronic Medicines Compendium (eMC) provides electronic Summaries of Product Characteristics (SPCs) and Patient Information Leaflets (PILs). It provides information on thousands of licensed medicines available in the UK, continuously updated with new and revised SPC and PIL information.

Clinical guidelines - from  Clinical guidelines aim to help health professionals and patients make the best decisions about treatment or care for a particular condition or situation. The guidelines are typically written in statement form by a reputable organization.

Guardian:  Best Treatments - Guardian readers can now access the BMJ Group's independent, high quality patient information on a wide range of health issues.

National Brain Appeal - The National Brain Appeal is the charity dedicated to raising much needed funds for The National Hospital for Neurology and Neurosurgery in Queen Square London.

Health apps Library - From NHS Choices - Safe and trusted apps to help you manage your health.

Healia (US site) - Healia is the premier consumer health search engine for finding high quality and personalized health information on the Web. (American site) (US site) - a US government Web site providing information and tools to help you and those you care about stay healthy.

MedlinePlus ( U.S. site) - MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations.  MedlinePlus is updated daily and can be bookmarked at the URL: There is no advertising on this site, nor does MedlinePlus endorse any company or product. - NICE Guidance (National Institute for health & Clinical Excellence, NHS) All the clinical guidance is produced in patient friendly versions called 'Understanding Nice Guidance'. 

Neurosupport  - Neurosupport offers non-medical advice to people with neurological conditions and the families, friends and carers who support them.

NeuroTalk Communities - A secure, reliable online support community for people with neurological disorders and diseases.

NHS Choices - NHS Choices is a service that aims to put you at the centre of your healthcare by providing a comprehensive health information service.

NIHSeniorHealth (US site) - This easy-to-use website features health and wellness information for older adults from the National Institutes of Health.

Patients like me (US site) - PatientsLikeMe is committed to providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease. - Details of nearly 2000 UK patient support organisations, self help groups, health and disease information providers, etc. Each entry is cross referenced and details are checked annually.  This site has advertising.

UKCRN Portfolio Database - Database of UK trials


Page last modified on 09 feb 16 14:28

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