Stream 1 was aimed at increasing our understanding of how and why people with dementia lose their independence. In order to do this, researchers used the methods listed below.
1. Reviews of existing evidence
Effects of nonpharmacological interventions on functioning of people living with dementia at home: A systematic review of randomised controlled trials.
A systematic review of observational studies of adult home care.
Planning and enabling meaningful patient and public involvement in dementia research.
Developing the New Interventions for independence in Dementia Study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and Randomised Controlled Trial evidence.
2. Interviews with people living with dementia, family carers, health and social care staff and home carers
“I just keep thinking that I don’t want to rely on people.” a qualitative study of how people living with dementia achieve and maintain independence at home: stakeholder perspectives.
"In the Bengali Vocabulary, There Is No Such Word as Care Home":Caring Experiences of UK Bangladeshi and Indian Family Carers of People Living With Dementia at Home.
3. Non-participant observations with home care staff delivering care to people living with dementia
4. Learned how similar programmes in the USA and Australia were working