I-CAN-CARE is our research programme, which began in 2016 and will run initially to 2019, with £1.5 million funding by Marie Curie (grant number: MCCC-FPO-16U)
The programme centres on prognosis, symptom control, and communication.
Research priorities for palliative and end-of-life care
In the last few years several reports regarding palliative and end-of-life care highlighted areas where further research and/or improvement of care would be of benefit. The Neuberger report in 2013 recommended more research into improving prognostic accuracy, while the research priorities for palliative care identified in 2015 by the Palliative and End-of-life care Priority Setting Partnership (PeolcPSP) included managing symptoms and medication and improving support for carers and families. Also in 2015, the "Dying without Dignity" report by the UK Parliamentary and Health Service Ombudsman identified six key areas where care of dying patients needed improvement. The first three of these, echoing the research priorities highlighted above, were: "not recognising when patients are dying", "poor symptom control (pain and agitation)", and "communication".
I-CAN-CARE addresses these three areas, seeking to improve end-of-life care by exploring how assessment of dying patients might be improved, and how clinicians might improve their prognostic skills and better communicate dying patients' prognoses to them and their relatives. It comprises two Work Packages: WP1 and WP2.