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Nutrition, hydration and care for people with dementia at the end of life: How can we best support family carers? (Nutri-Dem)
Project Summary
The aims of this study are to explore carers’ understanding of how best to manage eating and drinking at the end-of-life for someone with dementia; establishing if there are gaps in their knowledge and also identifying what information practitioners provide to carers. We will set the scene for developing a carer resource if this appears desirable.
This study will consist of three phases: 1) identify existing information resources for carers and existing guidelines for practitioners; 2) interview carers to explore how they manage end-of-life eating and drinking with the person with dementia and what information they use or would find helpful; interview people with mild dementia to understand what information they think should be given to carers; interview practitioners to understand what information they provide to carers; 3) through a co-design process with people with dementia, practitioners and carers consider the findings of Phase 2 to develop a resource.to support family carers at home.